cirrohsis questions?? please help

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very confused
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/24/2008 3:30 AM (GMT -7)   
hi im new here and just looking for a lil help. my mom has had hep c for years and has been a drinker as well. about a week ago she developed ascites and edema in her face and feet. she went to the hospital where apparently the doctor said that the fluid is from her liver draining out toxins? and he also said her liver levels were better than they had been previously. i dont kno if she is telling me the truth or minimizing it so i dont worry too much but id just like to kno that if she has ascites and edema does this definetly mean cirrohsis and basicly how long does someone with ascites and edema from cirrohsis have to live? does this mean she is going to die soon? and wat other test should she have done? thank u all for ur help.

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 11/24/2008 3:46 AM (GMT -7)   
Hi very confused and welcome to the forum

First of all I am sorry that your mother and your family are having to deal with liver disease. Alcohol and liver disease are not a good combination and will continue to damage her liver if she has not made the decision to stop drinking. The only way I am aware of that cirrhosis can be definetly determined is through a liver biopsy. Is she currently taking any type of diuretics, such as lasix, for the ascities? If not maybe she could discuss that option with her doctor.

Liver disease is different for each individual and noone can answer your question regarding what may happen.

Good luck to you and your family.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/24/2008 2:02 PM (GMT -7)   

Hi, Veryconfused.  I also want to welcome you to the forum.  As Lucy stated, cirrhosis is determined by a liver biopsy.  One of the symptoms, though, is ascites and edema.  It is a result of the liver not functioning properly.

Has your mom stopped drinking?  If she doesn't, she will be hastening her demise.  However, as Lucy also said, liver disease is a very individualistic thing and each person is different, so there is no way to tell at this point how much longer she has to live.  I can tell you, though, that if she doesn't stop drinking, she will not even be considered for a transplant when the time comes.

Liver enzyme levels are not always the best indicator of what is going on.  They go up and down.  Although I have hep C and had liver cancer at one point, my levels have never been really high and a couple were sometimes normal.

You said that your mom went to the hospital.  I assume you meant to the ER.  She needs to get a hepatologist to help manage her liver disease.  She should be on strong diuretics for the edema and ascites.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


very confused
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/24/2008 3:56 PM (GMT -7)   
hey well thank u guys so much for responding. yesd it is so hard for me cuz my mom is in a sorta denial like i try and nag that she has got to stop drinking even if she has cut right back i try and get thru to her its either stop or death. and i feel guilt cuz i think if she passes away an di didnt do everything i could to get her to stop drinikng then its my fault. i was just reading and i saw that if u have edema and ascites u could have something called portal hypertension and im just wondering why they (the doctors) didnt check her out and send her to a doctor  or put her on diuretics as u say. they didnt seem to do much. and since i worry about her health so much i worry about her all the sudden like dying tomorrow, like wat happens with cirrohsis how do people pass dfrom it? thanks for ur help

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 11/24/2008 5:38 PM (GMT -7)   
Very confused,

Welcome to the forum!! I think you will find alot of useful information here as well as alot of support from a group of caring individuals who are either going through this or have a family member that is.

First of all, I totall agree with Connie, in that this disease is not the same for every person. My husband was diagnosed with Hep C and cirrhosis of the liver 4 years ago. You REALLY need to get your mother treated by a liver specialist (hepatologist) as they are the experts on this, not a primary care doctor. With regard to the drinking, yes, she needs to quit drinking.....but, you cannot make her. She really needs to start going to AA meetings, but she will not effectively work her program until SHE is ready to. I would strongly urge you to go to some Alanon meetings, and they may help you sort through some of this as well. Because, if your mother continues to drink and makes herself worse.....IT IS ABSOLUTELY NOT YOUR FAULT!!!!

There are some educational threads that explain the stages of ESLD (end stage liver disease), and they would probably be verry informative for you.

I am so sorry you are having to go through this dreaded disease. YOu hang in there....take care of yourself.

Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/24/2008 9:01 PM (GMT -7)   

Portal hypertension is also another result of a failing liver.  The doctor she saw should have recommended she see a specialist--and perhaps he did, and she just didn't tell you.  An alcoholic is not going to want to be told that they can't drink.  They lie to doctors about how much they drink, as well as to family.  And some doctors will not want to waste their time on liver patients who are still drinking.  I know because I'm a sober alcoholic (sober for 22 yrs.)  It will do no good to nag her about it, either.  She needs to decide on her own that she needs help.  I agree that AlAnon meetings might be of help to you.  Whatever you do, don't allow yourself to feel guilty.  You didn't cause it and you can't cure it.

 


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


very confused
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/25/2008 2:38 AM (GMT -7)   
i just want to thank all of u for your responses to my questions, uve been most helpful. hope u take care :)

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/25/2008 3:33 PM (GMT -7)   
Veryconfused, you are most welcome.  Please feel free to post at any time.

Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll

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