I love your name. I have an Aunt June whom I love and like dearly! She turned 80 this past year and is the only living aunt I have left. With that I just want to tell you that I appreciate the courage it must take to face each day with this disease. My dear friend suffers many of the later symptoms, encephalopathy, etc. but she still beats me at Scrabble and keeps her sense of humor. I do believe she shows me her best side when I see her. Some days when we talk she is hardly verbal. I know that she perks up when I come over. We both are in new territory here. I guess all of us on this forum are in many ways. Your post touched my heart and I wanted to tell you that. We are all a force in these writings. For good, I hope. Take care and keep writing. I believe it helps to put some of these thoughts down to share with each other.
June, you do sound tired, and upset by your stress test experience. I have been having terrible problems getting to sleep at a decent time. My doctor (who has never wanted to prescribe sleeping aids) suggested melatonin (an OTC supplement.) I thought she was nuts, but decided to try it anyway when I found the 3 mg version for $4 at Winn Dixie (Walgreen's was much more expensive.) Amazingly, it works! I am sleeping better than I have in a long time, though still not getting to sleep as early as I'd like. I just forget to take the med until late. I get engrossed online and time flies by. Guess I'll have to set an alarm for 10 PM to take the med. Of course, I'll probably forget why the alarm is going off! LOL!
You really are so lucky to be stable for so long.
Post Edited (june17) : 12/3/2008 4:23:12 AM (GMT-7)
June, I am doing fine. Thanks for asking. I have gotten a break from medical appts. and am home most of the time. Gives me more time to devote to the forum. It is cold here now and I can't handle the cold. Sometimes I won't go out for 3 days at a time. Right now, I'm waiting for transportation to go have my nails done. My aunt in Sarasota is very ill and not expected to make it, so I'm flying down to see her on Fri. Will be back Mon. afternoon. I just want to say my goodbyes now, instead of at a funeral.
I do have a dermatology appt. at Mayo next week, which I've rescheduled twice. I just want to get a skin screening. The following week, I have a mammogram scheduled, but may change that if it's still cold. Otherwise, I have no blood work, scans, or hepatology f/u until March. I will know then how I'm doing for sure.
The melatonin comes in 1 mg, 3 mg, and 5 mg strength. Do you know what you took previously? If less than 5 mg, perhaps you need something stronger. I got the 3 mg, as that's all that Winn Dixie had. I have to take a Flexeril with it for it to work.
Van is here. More later.
I have had AIH for 2 years now. It is treated with Prednisone and usually with another immune suppresent. (spelling ?)
I was started on 60 mg of pred, and weaned down to 5mg. Now I am taking Imuran, and will be weaned off the pred.
I too never had any symptons untill I turned yellow, now I have severe liver damage. It is a roller coaster ride for sure.
This is a great place to vent and ask questions.
Post Edited (june17) : 12/8/2008 4:32:23 AM (GMT-7)