Hello. My name is Gwen. Its been sometime since I have been to these boards. I am 40 yrs old and in my early 30`s I found out I had elevated Liver Enzymes. Went through a whole host of docs before I was finally able to see Dr. Jeff Crippen at Barnes Hospital in St. Louis, Mo. In 2004 my LE were 6 times the norm and I was having the same symptoms that I am having now. He did a Liver Biopsy then. He stated that everything looked fairly normal then but he was almost certain I had Autoimmune Hepatitis but he was reluctant to begin treatment at that point because the drugs were so powerful. I have seen him once per year since then and he always tells me to report back if things get worse and in the mean time has my local doc to monitor my situation. Well, Ive done a lot of research since then. I believe I have been in remission. However, this past month my symptoms have started to flare up again, I am having pain in my knee joints, My stomach hurts up in the top just like it does before you get a bad round of the stomach flu. I have nauseau, occasional loose stools, mental confusion, headaches, fatigue like you would not believe...just all the other typical symptoms that I presented with in 2004. I have recently had my DNA tested for a Family Tree Project and have found out that I am of Northern Eurpoean Ancestry, in my AIH research, I noted that it tends to affect Young Women who are of Northern European Ancestry. I have several ppl in my family who have other Autoimmune Diseases as well. I have a sister and several cousins who are Insulin Dependent Diabetics. I have two cousins with MS and TN. I also have a diagnosis of Trigeminal Neuralgia (TN) Which is common with MS, I havent recieved a Dx of MS though. My mother had Pernicious Anemia, which is Autoimmune...I have a sister with Thyroid Disease as well. So there are a host of other Autoimmune Diseases within my family. I currently do not have any medical insurance. I am on Disability and had dropped my Insurance and I cant reapply until January, and coverage wont begin until June! I would like to speak to others here who have dealt with Autoimmune Hepatitis and just talk about
the symptoms and how long it took to come to an accurate diagnoses...etc.