Those watching someone with ESLD Going

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autumnrain
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 12/9/2008 2:07 AM (GMT -7)   
The hardest part of ESLD is to watch someone you love suffering, why must someone go on if they won't at least have a better quality life.  Believe me if I had my wishes my sister would get better.  I have prayed, lost sleep, become sick, and gave her herbs hoping maybe by some miracle she can be out of pain, and die peacefully.  It is a very lonely feeling to see people we love suffer from any terminal disease.  You sit thinking maybe something will make it turn around, but in case of my sister she did fairly well until last couple months.  Now I see her slowly slipping away and my heart aches.  I thought we were suppose to grow old together?

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/9/2008 8:53 AM (GMT -7)   
Hello Autumnrain and welcome to HealingWell. I am so sorry that you are going through this. Your right, it is the hardest part watching your loved one slip away and not being able to stop it.
My husband passed away from this horrible disease in April of 2007 after 3 years of a very hard fight. When I had to switch from plan A (doing everything possible to get him on the list and keep him there.) to plan B (grasping at straws to keep him alive and finally to Plan C ( calling in Hospice and at least make his passing easier.) It almost killed me. If it wasn't for this forum and the wonderful people here I surely would have not made it through the journey myself.

My heart goes out to you and all the others that are still fighting this battle. Please know that we are here for you too. Hang in there........As bad as you are feeling about what is happening to your sister....you can get through it. Maybe by the skin of your teeth like I did, but you can.

Lot's of thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


5Joan5
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 12/9/2008 9:42 AM (GMT -7)   
Hello Autumnrain,
 
My best friend who is only 52 is suffering through ESLD.   I have watched her change from a beautiful vibrant woman, to someone who can barely get out of bed most days.    I don't know how she manages to keep her sense of humor, but she does.   I just want to tell you that I often feel just the way you explained it.   She is like a sister to me and I too thought we'd be friends well into our 70's or 80's.   It doesn't seem likely since she's gotten so weak and has little chance for a transplant at this point.    I wear a smile and a pretty happy disposition when I see her yet often start to cry before I've backed out of the driveway to head home.   You are not alone.   The forum has helped me understand what's going on with her at different times and also to realize that others are going through this sadness too.   The one thing I have learned since all of this is that my capacity to love and care for someone is so much greater than I ever thought I had in me.   My friend has helped me see the beauty in living every day and appreciating even the crummy days.   So I hope you'll keep writing and reading here and find the growth and learning that I have found.   It will help you to cope.    Your sister is lucky to be loved by you.
 
Joan

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/9/2008 1:10 PM (GMT -7)   

What a beautiful post, Joan!

Autumnrain, I just wanted to welcome you to the forum.  There isn't much I can add, but if it's possible to get Hospice involved, they are wonderful with terminal illness.  Unfortunately, liver disease patients tend to deteriorate very slowly over a long period of time.  Is your sister not a candidate for transplant?

Loss is so difficult, regardless of the cause.  I lost both my aunts over the weekend.  Although they were both aged and it was not unexpected, it is still a great loss and I am grieving.  I flew out of town to be with one of them in her final days, and it was hard not to cry in front of her.  However, I was able to tell her how much I appreciated all she had done for me and how much I loved her.  I also sent little cards often to the other aunt.  That is all I know to do--let your loved ones know how much you care and be there for them to offer support.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/9/2008 5:08 PM (GMT -7)   
Welcome to the forum Autumnrain. I am so sorry that your sister is suffering from this disease. My husband is 44 and was diagnosed with hep C about 15 years ago and cirrhosis 2 years ago. It is a very ugly disease that is hard on the caregiver also. It is not easy watching someone you love slip away from you.

I'll be praying for you both.

Connie, I am so sorry to hear about your aunts. I know that you were very close with one of them.
I will continue to pray for you.
Butterflythree
 
There is always hope!


5Joan5
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 12/10/2008 9:27 AM (GMT -7)   

Dear Connie,

Thanks for your kind words.   I read your replies and think how wonderful it is that you share what you know with everyone here.   Many times I have been able to figure out what's going on with my friend, Mary because of your posts!  I too am sorry about your loss.   

Joan

 


autumnrain
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 12/17/2008 9:48 PM (GMT -7)   
My sister was hospitalized with heptic encephlitis, they let her out and two days she had to go to ER, and let her out again. It is hard as she isn't any better, miserable and all. If there is a God why must someone suffer?
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