Hello All need your PRAYERS!!!

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mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 12/14/2008 9:26 PM (GMT -7)   
Hello All,
 It has been a few weeks sence I have updated on my son Wil. I took him and his new bride to Shand's in Gainesville for his 6 month visit. Wil, had AML Leukemia at 16mths of age after going into remmision with that. At 16yrs of age we went for 10yr.check up in Orlando All Childrens Hospital and was diagnoised with Chronic HepB. Some of you know this story sorry, to tell it again anyway,after a Dr. dropped the ball Wil, was transfered to Shand's til present. For the past 4yrs. now we have had our share of ups and downs his being sick Dr.'s visits every 3months in July 08 we were told meds were working he had 2 small lesions on his right lobe of his liver .5cm but, all other organs were clear we would watch and see. Wil, and myself were told by the end of 2008 he would need a transplant. In Oct he got married and is an expectant daddy. Wil has gone from 144lbs to 190lbs since July, he looks great ,feels great and is so happy! Wil, had a CT and Labs done on Thursday and Friday was Dr's. visit. Great news say's Dr. your virus is no longer detectible it is showing negative. Then after looking at his CT report the bad news is the lesions on his liver is 1.7cm and he now has 2 golfball sized tumors on his right kidney.Dr. scheduled a stat MRI. Can anyone tell me how this is happening so fast without any knowledge or symptoms as I said he's feeling great. Anyway's please everyone whisper an extra little prayer tonight for my Wil as tomorrow we will get the results of these tumors and find out if they are cancerous and pray for me to have the strenght to deal with whatever we findout. Thank you all for listening! You All are always in my Thoughts and Prayers. Be Well!!!
Huggs and Smooches,
Toni

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 12/14/2008 9:50 PM (GMT -7)   
Toni,

I pray his tumors are benign. God bless you and your family and congratulations on being an expectant Grandma! Talk about bittersweet news. Hang on to your good fortunes and you will find the strength to overcome the difficult times.

My prayers are with you. Good luck tomorrow.

Penny

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/14/2008 11:12 PM (GMT -7)   

Hi, Toni!  It's been a long time!  I'm glad that Wil is feeling well and that the hep B virus is nondetectable.  That's good news.  As far as the lesion on his liver and the tumors on his kidney, I'm sure you recall my bout with liver cancer.  When it was first discovered, the tumor was approx. 8.5 cm x 6 cm--very large--and had not shown up on ultrasound the year before.  I now that think the radiologist may have missed it, as it grew very little after that, until the time I underwent treatment and surgery.  I am still cancer free, nearly 19 months later.  I had no symptoms at all, except for the usual fatigue from hep C.

So let's keep positive thoughts and I will also keep Wil in my prayers.  IF it's cancer, he can live with one kidney, and the liver lesion is small enough to be treated by a number of different methods.  Just remember that regular chemotherapy does not work for liver cancer.  IF it's cancer, the concern would be that the liver tumor metastasized to the kidney and perhaps other organs.  At this point, it's really too soon to speculate, but the important thing is that it was caught early.  I hope that the MRI he is getting is with Gadolinium contrast, as that is what will "light up" any cancer in the body.

Please let us know the results.

Big Hugs,

Connie

 



Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll

Post Edited (hep93) : 12/14/2008 11:15:21 PM (GMT-7)


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 12/15/2008 2:46 AM (GMT -7)   
Toni

I am so glad that Will is gaining weight and is feeling better. It is such wonderful news that his hep B has apparently gone into remission. I am sorry to hear about the increase in his tumors and certainly will keep him in my thougths and prayers. I hope that your family recieves good news at his appointment. Please keep us posted.

Lucy

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/16/2008 7:52 AM (GMT -7)   
Hello Toni, glad to hear from you. It's great that Will is feeling so well.

You know you have everyone's prayers for Will. There's options for Will. When they first found my husband's tumor they didn't think that it was cancer and waited to long to start any treatment. Be very proactive with the doctors and let them know that it is important to you for them to find out for sure if it is actually cancer or not immediately. Nexavar is a pill that they use for kidney cancer and now for liver cancer. Get educated on all the treatments and make the doctors shift it into over-drive. Don't let them drag their heels.

How are you holding up grandma? Take care.........lot's of lot's and prayers.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/16/2008 9:56 PM (GMT -7)   
Hi Toni, I am really glad to hear from you. I am glad that Will has been feeling well. I'll be praying that the tumors are not cancerous.
Butterflythree
 
There is always hope!


mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 12/18/2008 11:21 AM (GMT -7)   
Hello All,
        Just wanted to update on Dr's. apt. We talked to the Dr. fianlly yesterday about Wil's MRI and all he could say is the Radiologist say's that the lesion on his Liver has grown but, NO CANCER! YEH!!!! Of course he did say not all the report was back yet and he's not quite sure but, the 2 golf ball size tumors on his right kidney are probably benign as well. We have to call back on Friday. Basically Dr. say's don't worry we will follow up with another CT and MRI in 6 months. It is pretty scary as his lesion has grow almost 3 times the size in the past 6 months and of course his Kidney's along with the other organs were clear. Should I get a 2nd opinion or just wait to see? I am trying not to be an overreacting mother, and my now daughter-in-law thinks that maybe I am. Thank you all for your prayers and support it is greatly appreciated!
Huggs and smooches to All! You are in our Thoughts and Prayers as well.
Toni

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 12/18/2008 3:43 PM (GMT -7)   
Toni,

First and foremost.....YOU ARE A MOM!!! You are reacting as ANY of us moms would to our "babies"!! That is good news that the doctors do not think it's cancer. What are they going to do about the tumors....remove them....leave them, etc?? Are they affecting kidney function at this point. If it would give you peace of mind, go ahead with a second opinion....all they can do is tell you the same thing, huh?? I recently took my hubby for second opinions, and while the 2nd opinion doc agreed with the 1st doc.....he explained things a little better to us, which brought that peace of mind that I was speaking of. I am so glad that you got a good report.....and you know, just go w/ your gut. Moms have that sense, you know.....

Hang in there!

Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/18/2008 5:37 PM (GMT -7)   
Congrats on the noncancerous diagnosis!  I agree with Mer...for peace of mind, I'd have him see a second opinion.  Tell the daughter-in-law that it is best to be sure than to find out too late that someone made a mistake!

Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 12/18/2008 6:05 PM (GMT -7)   
Toni, I am so glad you received some good news. I am a mother too. And I agree with the others. A second opinion couldn't hurt. I will continue to pray for you.
Butterflythree
 
There is always hope!


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 12/18/2008 9:22 PM (GMT -7)   
Toni, I also had a tumor on my kidney. At first they thought it was cancer so they removed a slice of kidney with the tumor intact. The biopsy did show that it would have become cancer at some point if it hadnt been found as the cells in the tumor showed as A typical for cancer. They used to remove the whole kidney but now they can remove only a portion and leave it as fully functioning organ. Both my kidneys work great even though I am missing part of one. My was caused by a leision from an old injury, a car accident. Mine was found by accident, the DR said that kidney tumors can get as big as a football on some people before the have a back ache from pressure.
Sue
When I started counting my blessings my whole world turned around.

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