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kathysu811
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/13/2009 12:13 PM (GMT -7)   
hello everyone, posted earlier, and am now  posting to introduce myself. I am 45 yrs old and have had alot going on over the last year. I started in march with chest pain which landed me in hospital.(everything ok). at that time i found out that my platletes were low 40s.(been slightly low for a few yrs, but doc was not concerned, he said may be idopatic). I pressed the issue with him after hosp stay, and he had me see hematologist/oncologist, who did some testing(abd cat scan,labs,some other test like xray checking for lymphoma,etc.) results showed enlarged spleen which is causing low platelet count. hematologist monitored labs for 3 months and after that I had another ct scan, he felt that veins between liver and spleen were enlarged(portal hypertension). at this point he decided to do siver bioposy, which showed liver fibrosis(NALD). this dr sent me to see heptologist who did not seem too concerned about whats going on. He told me to keep diabetes(type 2) under control,loose weight, and take fiber supplement to help constipation, he also wanted me to have endoscopy and colonoscopy which showed very small varicies, and one polp which was removed and tested ok. I have been having pain in liver everyday and seem to have stomach upset alot,also have fatigue(tired all the time). Is this normal to experience with condition I have, and anyone have any suggestions on how to fight fatigue? thanks
Kathy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/13/2009 5:30 PM (GMT -7)   

Hi, Kathysu, and welcome to the forum.  I hope you will find some of the answers that you seek here.  I know that you will get a lot of support, as the people here are wonderful.  Unfortunately, I do not have any knowledge of your particular disease.  (I have hep C.)  I do have fatigue, as does anyone with liver disease.  I don't "fight" it...I adjust my life around it.  I get a lot of sleep (which includes taking the phone off the hook so I won't be awakened early in the morning), eat a very healthful diet of mostly fruits and veggies, and take a multivitamin, and vitamins C and E every day.  I also try not to ingest any meds or OTC supplements that would be injuriuous to my liver.

I know there is at least one person on the forum with NALD, several with immune deficiency liver disease, and a couple with fatty liver.  Hopefully, they will be able to offer more suggestions.


hep93
Forum moderator - Hepatitis


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/13/2009 5:31 PM (GMT -7)   
Kathy, I just wanted to take the time to welcome you to the forum. I do know that fatigue is very common with liver disease. My husband has hep C and cirrhosis. He has had problems with fatigue for many years.
Butterflythree
 
There is always hope!


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/14/2009 8:00 AM (GMT -7)   
Hello Kathy and welcome to HealingWell. So sorry that you have to deal with this disease. None of the liver diseases are very kind to people.

Connie is right .........about the proper rest and eating a good diet being a big part of fighting this demon. Did the doctors tell you to take any vitamins or supplements?

We are glad that you found us. You'll find our forum to be full of very kind, compassionate, and knowledgeable people.

Thoughts and prayers.........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


kathysu811
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/14/2009 2:57 PM (GMT -7)   
no doc did not say anything about vitamins. is there something you would recommend? I am willing to try new things to feel better. thanks for the welcome and prayers pink.
Kathy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/14/2009 4:08 PM (GMT -7)   
Kathy, I recommend a daily multivitamin without iron plus 500 mg of vitamin C a day as a minimum of supplements.  Ideally, you should check with your doctor first.  Many doctors feel that vitamin supplements are not necessary if one is eating a balanced diet, but few of us do take in all the nutrients we need through diet alone.  Iron is not good for a damaged liver, which is why I emphasized a multivitamin (MV) w/o iron.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/14/2009 4:57 PM (GMT -7)   

Hi Kathy,  Do speak with your doctor about vitamins....as some of the meds that you may take may counter act your body's ability to absorb them as it should.  They had my husband taking the multi/vitamin with out the iron as Connie has mentioned but they also had him taking others as well.   But it all depends on your system and the meds that you are currently taking.

 

thoughts and prayers.........  


Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


kathysu811
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/14/2009 5:24 PM (GMT -7)   
thanks for the info I will check with doc about multi vit.
Kathy
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