Finally on the transplant list!!!

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pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 1/15/2009 11:53 AM (GMT -7)   
My friends,
 
Today I report that my husband is finally on the liver transplant list!  His MELD score is 23 and he is 2nd in line on the 'A' list.  He has been in the hospital since December 16th.  He is Jaundice and weak, but hanging in there.  This has been a long time in coming! 
 
Thank you all for your prayers and support.  I will keep you posted.  For now, I'm off to the hospital again.
 
Take care.  You are in my thoughts.
 
smilewinkgrin  Penny  tongue   
 

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 1/15/2009 11:57 AM (GMT -7)   
eyes  Whoops, I selected the wrong icon.  I meant to post a thumbs up!
 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/15/2009 3:58 PM (GMT -7)   

Penny, that is wonderful!  Congratulations!  I hope that your husband gets his transplant really soon and can begin to return to a normal life.

BTW, what is PSC?  I saw you mentioned that in your reply to LaBunna, but am not sure what it means.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/15/2009 7:39 PM (GMT -7)   
Penny, I am so happy for you both. I will continue to keep you in my prayers.
Butterflythree
 
There is always hope!


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 1/15/2009 8:39 PM (GMT -7)   

WAHHH-HOOOOOO!!! Congratulations! I will pray that a liver becomes available quickly for you!!!

 

Mer


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 1/16/2009 4:49 AM (GMT -7)   
What wonderful news. My continued thoughts and prayers for a healthy liver.

Lucy

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 1/16/2009 1:39 PM (GMT -7)   
Hep93,

PSC (Primary Sclerosing Cholangitis) is a slow, progressive disease in which the bile ducts of the liver are narrowed as a result of inflammation and scarring. As bile backs up, it damages liver cells and, ultimately, leads to liver failure. PSC affects about 3 per 100,000 people, far more males than females, and usually strikes in the prime of life. It is not hereditary and there is no known cure. It is believed to be a autoimmune disease where the body attacks its own organ.

Chicago Bears Hall of Fame running back, Walter Payton, was diagnosed with PSC. Payton was the all-time leading rusher in the history of the National Football League. He was listed for a transplant and developed bile duct cancer. His cancer was treated but he died waiting for a liver transplant in November 1999 at age 45.

My husband was diagnosed in September of 1994. His health has declined every year since. He is 6' tall and would normally weigh between 184 and 200 pounds. He currently weighs 142 pounds. He's lost all of his muscle tone as his liver is not producing the protiens necessary to build muscle. He has experience every dreadful ESLD symptom with the exception of kidney failure. He is very fragile and will not survive long without the transplant.

Penny

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 1/16/2009 6:09 PM (GMT -7)   
Penny, I know you are relieved he is on the list! Praying for a liver for your husband and a successful recovery!
Teresa

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/16/2009 6:46 PM (GMT -7)   

Penny, thanks so much for the explanation!  That sounds like a relatively rare disease, and certainly an awful one--as are all liver diseases.  I hope and pray that your husband gets a new liver soon.  He has been sick for a long time.

Hugs,


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 1/18/2009 8:43 AM (GMT -7)   
I'm happy to report that my husband is now 1st on the liver transplant waiting list. He is still in the hospital, but he is stable. It is a tight wire act to adjust his diuretics so that he is not too dry (encephlapathic) or too wet (ascites). We've had great success in the past 4 or 5 days.

I'm starting to get very nervous. I know this surgery is his only chance of possibly living a normal life, but I also understand the risks associated as well as the complications that may arise after the transplant.

Hanging in there.

Penny

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/18/2009 10:21 AM (GMT -7)   
Penny, That is great news. I'll continue praying for him to receive the transplant soon and for a speedy recovery.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/18/2009 1:27 PM (GMT -7)   

Great news, Penny!

Prayers are with you and your husband.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Sad Daughter
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/19/2009 2:33 PM (GMT -7)   
concratulations I think that is great my prayers will be with you.  My mother is 72 and her Meld is 20 and they say she is not a candidate for transplant.  I am so happy for you.
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