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okielady
Regular Member


Date Joined Sep 2007
Total Posts : 77
   Posted 1/17/2009 8:35 PM (GMT -7)   
Hello everyone, Jerry has taken a bad turn for the worse.  He hasn't ate very much of anything in the last 8 or 9 days now and I feel like he may not very many more days.  He's in so much pain, I can't get it under control.  I'm calling the dr Mon and see about the liquid morphene that goes under the tongue.  I knew this was coming but it is truly alot worse and harder than I imagined.  I thought I was better prepared, but as everyone else on this forum knows this is truly a horrible thing.  A brief update for those who don't know our story, Jerry was dx with Hep C in Aug 07 and had a transplant in Oct 07 after being on life support for over a week,  In May 08 he was dx with Liver cancer that had spread.  He now has it in his spine and bones in his legs and possibly in his prostrate.  Please keep Jerry, myself and our family in your prayers. I know this is not going to be easy, but that the Lord will get us thru this. 
Thanks for your prayers.
Helen
 

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 1/18/2009 2:06 AM (GMT -7)   
Helen, I am so sorry this has happened to you and Jerry. I cannot imagine your suffering. I've been fighting to get my husband listed on the transplant list for the last 6 years. He was listed on Jan 14th and is currently at the top of the list. I've viewed this as the light at the end of the tunnel. But, your story reminds me that there are no guarantees. What a cruel twist of events.

You will be in my thoughts and prayers. I pray that the doctors find a way to control Jerry's cancer or at the very least relieve him of the pain he is suffering. I pray that God grants you the strength and support you'll need to see you through this ordeal. Keep the faith. Prayers are answered and miracles do happen.

Penny

La Bunna
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 1/18/2009 8:10 AM (GMT -7)   
Helen
There aren't words to ease your burden. There is only faith in God and God's will. I will pray that God gives you the strength you need and the faith you need to hang on thru this sad and horrible time.
Peace be with you, Helen.
And God Bless your Jerry.
La Bunna

"Courage is the art of being the only one who knows you are scared to death"


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/18/2009 8:26 AM (GMT -7)   
Helen, I'm so sorry that Jerry is in so much pain. I'll be praying for you both.
Butterflythree
 
There is always hope!


oldfriend
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 1/18/2009 10:28 AM (GMT -7)   
Hi Heleln,
I know what are you going thru. My father is diognosed with the same thing. First it was Alcoholic Cirrhosis, and right now they found a mass on his right lobe of liver, one totally damage spine and two partially collapsed. right now he can't walk and he is on wheelchair. But the Onchologist put him on Sorafenib. Please next time when you talk to his doctor ask about Sorafenib.
Helen I am really sorry for you and Jerry. Please just have faith.
I'll be praying for you both.
HUGS
Shiva

Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 1/18/2009 12:28 PM (GMT -7)   

Helen, my heart goes out to you and I will keep you and Jerry in my prayers! 

 

Hugs, Judith

 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/18/2009 1:21 PM (GMT -7)   

Helen, I'm so very, very sorry that Jerry has taken a turn for the worse and especially that he is in so much pain.  Funny, I just woke up from a dream in which the cancer had come back in me and the doctors weren't controlling my pain...were instead giving me arsenic.  shocked

I know there are also morphine suppositories.  You might check into that, as well.  Do you have Hospice involved?

Our thoughts and prayers will certainly be with you both during this very difficult time.

Hugs,


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


okielady
Regular Member


Date Joined Sep 2007
Total Posts : 77
   Posted 1/18/2009 8:43 PM (GMT -7)   

Well we made it thru another day.  He hasn't ate anything today, just drank water.  He doesn't get up to go to the restroom, just uses the urinal, he's just getting weaker.

We did try the Nexavar, with no success and he did so much better when we took him off of it.  We aren't going to the doctors anymore and he wants to die at home, so I'm doing the best I can. 

If his disease hadn't progessed as fast as it did, maybe they could have done a biopsy and found out about the cancer before hand and moved him up on the list, but still yet 2 months wasn't much time.  In reality maybe he shouldn't have gotten the transplant, but I felt like God was giving us all a second chance to say our "I Love You's" and we have definitely had some good times since the transplant.  We are going thru a bad time now, but I Thank God everyday for the time we have had.

For all the caregivers out there, I know how hard it is.  Transplants do come and I have seen some real success stories out there.  Sometimes they don't come and patients do die, but never give up.  Jerry was on life support from 10/09 til 10/17 when he got the transplant and not one time did they ask me if they could turn it off.  They did tell me that he would not leave the hospital alive without a new liver.  I never gave up.

keep praying.

Helen

 


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 1/19/2009 6:01 AM (GMT -7)   
Helen

You and Jerry and both in my thoughts and prayers. May you have the strength to endure this horrible time.

Lucy

oldfriend
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 1/19/2009 7:53 AM (GMT -7)   
Helen,
My hearts goes out to you, and I'll pray for you both.
Hugs
Shiva

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/20/2009 1:04 PM (GMT -7)   
((((Helen))),  My thoughts and prayers are with you and your family........

Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


okielady
Regular Member


Date Joined Sep 2007
Total Posts : 77
   Posted 1/20/2009 10:05 PM (GMT -7)   

We finally started Hospice today.  We've had a very bad evening, I'm hoping he will sleep tonite.  I hope that Hospice will be able to get his pain controlled.  It was good reading good news tonite on the forum.  God is great.

Helen


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/21/2009 7:44 AM (GMT -7)   
Hello Helen, I hope that hospice will be a good as help to you as it was to me. It was wonderful to have other people to really talk to about my husband's condition. Until hospice got involved, I had no one but this forum. They were a God send to me.

Please know that Jerry and you will still be in our prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/21/2009 11:32 AM (GMT -7)   

Helen, I, too, am glad to hear that Hospice is now involved.  I know they will be of great help to both you and Jerry.

Please do keep us updated.  And remember to take some time for yourself.

Hugs,


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 1/21/2009 8:48 PM (GMT -7)   
Helen, Hopefully hospice will be able to get Jerry's pain under control. From what I have heard they are wonderful at what they do. I continue to pray for you both.
Butterflythree
 
There is always hope!

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