Hello, Mo, and welcome to the forum. You will find our members very understanding of what you are going through. As a liver patient, I find it so frustrating when other patients stay in denial...when getting to acceptance and taking action can be lifesaving.
All liver patients have fatigue. It is the main symptom of hep C, and what got my doctor to test for hep C. As your husband's health declines, he will realize what is happening. Please do try to get counseling or a support group for yourself.
You are always welcome to vent here, and please do keep us updated.
Mo, hi and welcome to HealingWell. As you can see everyone on this forum has a similar story so we can all relate. The most important thing I think is to take care of yourself first. You will not have the energy to care for your husband if you are completely wiped out physically and emotionally. A support group of some kind is a way for you to vent, become more educated about what to expect, and an avenue to reach out to others that understand what you are going thru. I can tell you that this forum did that for me but if there is an actual group meeting I think it will be even more of a benefit to you.
Dealing with the anger and disappointment is often the hardest for the family to cope with. To move beyond that (as much as possible) is a real challenge. You'll have to immerse yourself to some degree in becoming educated about the disease and what is to follow medically for him. You'll need to know signs and symptoms and the progression (stages) of liver disease. It helps to know what you are up against and what you can do to help him. Dealing with impending death is not something any of us want to face let alone actually confront head on I know. But, in reality it is a remarkable healing mechanism. What may seem quite impossible right now becomes possible as time goes on. Caregivers do not give themselves the credit they deserve or the energy required to heal themselves. Try to address each problem as it comes rather then dwelling on what might happen tomorrow. Take time for some laughter, picture taking of the family together, and enjoy whatever time you may have together. NEVER EVER give up. Vent your frustrations here on this forum because we all understand what grief is. Plus, it feels great to dump all the pent up fears and anxieties. GOD bless.
“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Mo, it's true that your husband would not be considered for even being evaluated for a transplant unless he has 6 mos. of sobriety, evidenced through AA meetings or some type of alcohol counseling approved by the transplant team. I assume that he has finally stopped drinking now?
If he has to use denial as a coping mechanism, so be it. However, as I said, it will at some point become obvious to him that he is in end-stage liver disease.
You continue to have our thoughts and prayers.