Hi, Dakota, and welcome to the forum! I know there are some other members here who have AIH, so give it a few days and I'm sure they will respond to your post. I know that Prednisone is one medication that is used to treat AIH. Are you on any meds at this point?
You are sure to find the support and info you need here. So again, welcome!!
Hi, Lucy. I am glad that you had a response to your post. In answer to your question, enzymes are complex proteins that break down food substances, causing them to break down into simpler compounds. When the liver enzymes test as above normal, it generally means that your liver is damaged and having to work hard to break down the foods and drugs that it filters. That is why red meat is discouraged; it is the hardest substance for the liver to break down. The testing of liver enzymes is the easiest way to determine liver health or damage. However, they are not the be-all of liver knowledge. Biopsies and scans tell far more. I have hep C and had liver cancer; however, my liver enzymes were never as high as 3 x normal.
Although I have blood work every 3-4 months, the doctors rely more on the results of CT scans and MRIs with contrast (also every 3-4 mos.) to see what is going on. The blood work also includes testing for potassium, protein, etc., which are also important in liver health.
Please do not focus so much on possibly needing a transplant a few years from now. Learn to live one day at a time and do what you have to do today to feel better. Don't forget to have some fun. Eat a healthful diet and get plenty of sleep. It's important that you take care of yourself.
I also have AIH, for the past two years or so. I was on prednisone 40 mg for a whole year, and I'm on other meds now (cellcept). I have "early" cirrhosis, which was found on the liver biopsy they took when I was getting the diagnostic tests. I have been mostly under control, but when meds were lowered "too far", the enzymes went up. I feel good most of the time, but have some nausea as a side effect.
I also agree--try not to worry about transplants. Your future is not that predictable, and some people can stop meds entirely without a recurrence. (in other words, cured). Most don't, but it is not impossible. It is important to find a doctor who you trust, and then just live, following the doctor's orders. I am the type who will drive myself crazy with options---should I eat this? should I take that? I have found that good general nutrition with rest and exercise are most important, then just go and do your thing in life!!!! Let the doctor do the worrying!!!!
Hep C had a great explanation of enzymes (a couple of posts above) and when I was trying to understand cirrhosis, I went to google and typed in cirrhosis. I used google images also. Note some of the posts from 1Shelly1. I think they've been "bumped" up towards the top of the forum. She explains in understandable language about the liver and other things that really helped me understand what was going on with my best friend. Knowledge and understanding are two more ways to combat this disease.
Are you getting the answers you seek by following the references in the posts? How are you feeling? How have the doctors been treating you?