Hi From a Newbie

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BigToe
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/17/2009 5:45 PM (GMT -7)   
Hi
I have been browsing this forum a lot over the last couple of weeks and thought I should say hello.
I have found great comfort in some of the stuff I have read, and at the same time some of the stuff has been difficult to read.
 
At the moment, I have nothing else to say, but I am sure that will change.
Why am I here?
My Auntie is in hospital with ESLD and I am heartbroken. I visited her last week and will go again this weekend, but this week is going so slowly .... it is driving me mad.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/17/2009 8:21 PM (GMT -7)   
Hi, Big Toe and welcome to the forum!  I'm glad you decided to join us.  I know you will get a lot of support and info here.  Do you know what your aunt's ESLD is from?  Feel free to ask questions and maybe someone can answer.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


BigToe
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/18/2009 1:00 AM (GMT -7)   

She is an alcoholic, although has not admitted that (at this stage, there is not a lot of point in pushing that issue). She has been pretending she is dying from lung cancer for about 18 months, so I guess she has known about this for some time. She denied herself any medical treatment for most of that time as they moved house and she did not register with a new doctor. She has malnutrition, ascites and brain damage. She had a seizure two weeks ago today and went into Intensive Care where they gave her only a few hours to live. On the Friday they stopped all treatment and left things to nature. Last week the doctors were amazed that she was still alive as they knew she had given up the will to live. Despite everything we had some very sensible chats last week, and had some laughs too - which was great. They are talking about sending her home from hospital which will be great. All we want is for her last moments to be comfortable etc.


5Joan5
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 2/18/2009 10:30 AM (GMT -7)   

Dear Big Toe,

What you said about getting comfort and finding it hard to read some of the posts sounds so much how I perceive the forum too.    Dealing with ESLD is so hard.   The forum gives me a chance to write about how I feel and to learn about how others are coping whether they are the ill one or the loving person who has to watch this devastating disease.   I'm glad you wrote.   I hope it helps you.    Take care. 


Joan
 
Best friend is in ESLD, has HepC and cirrhosis. 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/18/2009 11:35 AM (GMT -7)   
Thanks for letting us know more of your aunt's situation.  I hope that she can go home and be comfortable at the end of her life.  I also hope that you will draw comfort from others in this forum.  I know it's a sad situation.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 2/18/2009 9:34 PM (GMT -7)   
Welcome to the forum Bigtoe. I am glad you decided to join us also. I know what you mean when you say the subjects are comforting and also heartwrenching. The people here provides so much comfort, but what the disease is putting them all through gives so much heartbreak. You'll be in my prayers.
Butterflythree
 
There is always hope!

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