So sorry to hear your news. It is a nasty disease and yes, I think most of us can put ourselves in your shoes and understand how hard this is. When there's hope for transplant, that helps. Once that is gone, the disease is still there, but the hope is not. We are all going through our own story with this, I hope you'll keep coming back and writing. It helps me.
Hello Sue, I am sorry that your mom isn't doing better. Lucy is absolutely right.......hospice is a wonderful organization. So she couldn't be in better hands at this point. I was so impressed with the hospice here that I plan to volenteer with them when I retire or when my life slows down some .....which ever comes first.
You're right....all of us know what a horrible disease this is. The toll that it takes on the patient and family is horrendous. But that's why we are all here.......to support and help each other through it.
Take care.......thoughts and prayers.........