childhood leukemia and now Hepatitis B & C and maybe return of leukemia. Question on blood counts

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achord1946
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 3:29 PM (GMT -7)   
At 16 months old son had AMML (leukemia,) survived all and now 35 yrs old, and diagnosed with Hep. B and C and chirossis. Questions on blood counts . don't know if counts go crazy with meds or something else going on..Dr's not saying much. Mono count said critically high, platelets are 62,000 on shot to raise white count but hasn't raised much,if leukemia has returned heard they can't treat it as it affects the liver,been on interferon and other drugs since June counts still not at a minus are close to where Dr's want count to be.?
Comments needed

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/25/2009 5:04 PM (GMT -7)   

Achord, welcome to the forum.  I am so sorry that your son has gone through so much and is still going through it.  I assume the hep B and C is from transfusions back before they had screening for hepatitis.

Although I have hep C and cirrhosis, I've had no personal experience with high or low blood counts.  I suggest you nail down his hepatologist, if he has one, and question him directly about what concerns you.  It may be difficult to get info as privacy issues come into play, since your son is an adult.  You may have to ask questions in his presence, unless you have Power of Attorney.

Sorry not to be of more help, but perhaps someone else has more to offer. 



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 2/26/2009 10:43:55 AM (GMT-7)


achord1946
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 5:11 PM (GMT -7)   

Thanks for the reply,

my son is in the military and trying to get in touch with Dr. has been so aggravating..to us both..


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/25/2009 8:29 PM (GMT -7)   
That certainly does complicate matters.  I'm rather surprised that they haven't given him a medical discharge, but I know nothing about how the military works.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 2/25/2009 9:04 PM (GMT -7)   
Achord, Just wanted to take the time to welcome you to the forum. I'll be praying for your son.
Butterflythree
 
There is always hope!


achord1946
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 9:05 PM (GMT -7)   
Thank You Butterfly..

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/26/2009 5:12 AM (GMT -7)   
achord
Wanted to add my welcom to the forum. I know that some medications can affect the liver and enzymes, but Connie is right that he should really try to pin down his doctor about what it all means. I go in armed with a specific list of questions that I have which helps me remember what I want to ask and seems to make the docs more specific in their answers. Good luck to both you and your son.

Lucy

achord1946
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/26/2009 12:37 PM (GMT -7)   

Thank You Frustrated,

With the military, he gets his blood test on the base, but his Dr's are 2 hrs away and it's impossible to catch one of his Dr's. He has to wait 2 to 3 wks after blood work till his liver counts come in to see the Dr. In the mean time we are looking at these counts that show critical  and High and it gets our minds going crazy till time to see Dr.

My son will be getting a medical retirement after 14 yrs in military and 3 tours in Iraq, but that won't be till his 4 yrs at this base is up in July. He did read something showing counts could show rheumatoid arthritis. Could it be? So we wait, and wait, and wait.

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