Toolost, I have hep C and cirrhosis and have lived through liver cancer! I was having blood work done every 6 mos., but it was caught on a yearly sonogram. The tumor was so large that I really feel it was overlooked the prior year. Fortunately, I received SSD and Medicare around that time and was able to go to Mayo Clinic. They literally saved my life, as the liver CA had metastasized. It will be 2 yrs. in May that I have been cancer free. Just to let you know that if your husband DOES have liver cancer, it is possible to overcome it. My AFP never was very high, even when the cancer was discovered. Although they take blood work every 3-4 mos., in my case it is not the most reliable indicator of what is going on with my remaining lobe of liver. Therefore, I have a CT or MRI every 3-4 mos., as well.
I'll be praying that your husband's CT scan is negative, but in case it's not...just know that it is not necessarily "the end."
Amen Hep93!!! You are truly an inspiration!
TooLost, that is HUGE that he has stopped drinking. That is honestly the very best thing he can do for his liver. It's also good that he got a date for the CT scan. Sometimes things move slowly, but at least they are getting done.
TooLost, that's only a little over 2 weeks more until the scan...not too bad.
I can tell you that after drinking for so long...numbing his feelings...he cannot begin to even know how to express them now, but you can be sure that he does have a lot of feelings going on (fear and anger are primary.) If you can't get him to talk about them, see if you can get him to go to AA...even offer to go with him. The best meetings for newcomers are Speaker Meetings...generally held once a week...where he will not have to say a word, but just listen to someone tell their story of "what happened, what it was like, and what it's like now." If he refuses to go, you might let him know that to be considered for a transplant he has to be verifiably sober in AA, or an alcohol counseling program approved by the transplant team, for 6 mos. When an alcoholic stops drinking without a 12-Step program or equivalent, he is just "putting the plug in the jug." Nothing else has changed. If nothing changes in him, the likelihood of relapse is huge. Just some things you should know.
Keep us posted!
Hi, Toolost. Well, that's good news that the scan showed no lesions! The TIPS should work indefinitely. Someone with more experience with that can address that issue. As for the MiraLax, I take it. In fact, the hepatologist prescribed it prior to it becoming available OTC. It's a fiber laxative, very gentle. Is your husband also taking Lactulose? If not, then the MiraLax should be okay for him. It IS important to make the hepatologist aware of everything he's taking, though, even OTC vitamins and supplements.
It's a shame that your husband doesn't want to take the antidepressants, though they usually all have side effects that can be unpleasant (weight gain and dry mouth are two common ones.) However, I'm glad to hear that he isn't drinking alcohol!
Thanks for keeping us updated! Don't forget to be good to yourself!
TooLost, the TIPS procedure should help your husband feel better. Don't give up on his attending his daughter's graduation! If he feels better, he may be up to going. Also don't give up on the idea of antidepressants.
Let us know how the procedure goes.