I haven't posted on here in what seems like, forever! Sorry about
that...I have to say I've been busier on a Yahoo group specifically for AIH patients. I did come on yesterday to check on JohnCT and then thought I'd check on Rhonda (itsme) too.
It was good catching up on old posts.
So I came across this one. Sadly, it isn't unheard of to have children/teens diagnosed with AIH. There is an 18 month old and a few under 5 on the Yahoo group (obviously moms are writing in
ButterFlyGirl, pregnancy can cause relapse/flare. Depending on how damaged your liver still is (some, not all, damage can be reversed with treatment), they may say it's OK. It would be considered a 'high-risk' pregnancy and you'd need to see a high-risk ob-gyn and make sure that person/team is in direct communication with your liver specialists. Personally, and I know it's easier for me as I already have a child, I wouldn't risk it. There's always adoption... What meds are you currently on?
Rhonda...so sorry to hear of your other complications (pleurisy)...I hope you are doing better. I'm hoping I remember this correctly from another post but you had weaned off your pred at a pretty quick rate from the 5mgs and had severe joint pain, correct? Rapid weaning from pred causes joint pain....the slowest wean is the final wean. I spent 11 months on 5mg and it took 2 months to wean to zero. I had to drop 1mg every 2 weeks with a blood test before, in the middle and at the end to check LFT's. I haven't had any pain. There are a few people on the other group who dropped too quickly and did experience the joint issues as well. There are also a few who could not tolerate the imuran and are on other immunosuppressants. I do hope you are well now.
Mrsquickgt....what meds is your mom taking? I'm guessing she has cirrhosis and that's why you are inclined to think that she may need a transplant? Cirrhosis also does not mean one will ever need a transplant. It's easy for us to get scared and assume that once that happens, it's a certainty but the liver has an amazing ability to regenerate...even when the initial docs say a transplant is in your near future. There's a girl on the Yahoo site who was diagnosed when she was 10 with severe cirrhosis. She barely had any viable cells. Her mom asked them to try medication first...she is on year 6 of only being on meds and is doing great. They believe what they see on her CT scans is regrowth.
Not everyone can pinpoint a 'cause' for their AIH. Most of the time it's simply that we had a virus (even the common cold) and our immune systems went into overdrive, mistook our livers as the invading organism and attacked it. Sometimes it's a reaction to another medication. That's why it's important now to watch what we put into our bodies. Double check all over the counter and prescript
ion meds with your hepatologists. Don't assume that your regular doc is familiar with AIH so make sure they double check with your hep too before they treat you. Mine is great, she calls my hep whenever anything happens with me.
Sorry so long...guess that's what happens when you don't pop in to see what's up for a while...
I hope everyone is well! I'll will try to be better and being on both sites!