new to liver diease Hemochromatosis

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pattymo.
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/28/2009 9:30 PM (GMT -7)   
Hello
Anyone out there that can answer questions

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/28/2009 9:58 PM (GMT -7)   
Hi, Pattymo.  I know we have one member whose husband has hemochromatosis.  You might try doing a search for that to find her posts.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 3/1/2009 4:50 AM (GMT -7)   
 
Hi Pattymo and welcome to the forum. 
 
There is a great deal of information on the Internet regarding hemochromatosis (HHC).  Are you having trouble finding a specific answer?  Perhaps I can help you research it.
 
Thanks,
 
Penny

pattymo.
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 3/1/2009 5:10 AM (GMT -7)   
I go to see spec the 9th to find out about treatment. The murse just said I have iron in liver and liver count is up. Just don't know what is going to happen

pattymo.
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 3/1/2009 5:11 AM (GMT -7)   
I go to see spec the 9th to find out about treatment. The murse just said I have iron in liver and liver count is up. Just don't know what is going to happen

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 3/1/2009 8:51 AM (GMT -7)   
Hi Patty, I'm sorry that I don't have any knowledge with HHC. I just wanted to take the time to welcome you to the forum.
Butterflythree
 
There is always hope!


pattymo.
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 3/1/2009 8:55 AM (GMT -7)   
Thank you I have been reading alot the thing is I don't talk to spec  until the 9th about treatment and there so many different things to consider.

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 3/1/2009 10:47 AM (GMT -7)   
Patty,

If the disease is diagnosed early, treatment can begin that will reduce the chances of getting other, more serious complications. Treatment consists of unloading iron from the body. This is done by having a unit of blood removed up to twice weekly until the iron levels return to normal. The earlier you are diagnosed, the better. All of your family members should be tested for hemochromatosis as well. This is usually hereditary.

Early symptoms include;
Weakness
Fatigue
Abdominal pain
General muscle aches
Loss of sex drive
Impotence
Cessation of monthly menstrual cycles
Joint pain in the fingers
Shortness of breath on exertion
Increased skin pigmentation (a bronze color)
Loss of body hair

As far as your liver is concerned, if the diagnosis is made before cirrhosis develops, life expectancy is normal, and, with treatment, almost all other complications of iron overload can be reversed or stopped from progressing.


Penny

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 3/1/2009 8:23 PM (GMT -7)   
Patty,

Welcome to the forum!! I have very limited knowledge of hemochromatosis....my husband has the good gene/ bad gene for it (heterozygote) as well as alpha 1 anti-trypson deficiency. He is currently on a transplant list due to hepC/cirrhosis of the liver. Howeverr, I do know that with HHC, one of the treatments is to remove blood from the body a couple of times a week, as Penny mentioned. I agree with Penny, that all of the family members should be tested as it is a genetic disease. You hang in there and I do pray you get the answers you need.

Mer
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