Good Morning all
I thought I would give an update since it has been now 1 week since we went in for the eval of the TIPS. My Mom lives alone but only 7 miles away from my sister. I call and check on her daily but live an hour away. I have spoken to her everyday this week and all seemed well right up until yesterday when we couldn't get her on the phone.
My sister went over there and our Mom was very jaundice and VERY confused. She knew who my sister was but could not get off the sentence she was stuck on. There were signs of her doing odd things around the house, things that just weren't our mother, and she had been talking on the phone....to dead air. My sister called the liver coordinator and he in turn called her doctor. We then got told to take her to ER. So, off we went and once evaluated Mom knew the year, the president, but thought she was at St. Luke's (a place we haven't been in 6 years) and you could tell she was at a loss for words. The think process is there just not the words to speak the thoughts.
A round of blood work and Dr. Monsour just so happened to be there that night. (He has been with us since Day 1...18 yrs ago) Her amonia levels are at a 56, bilirubin is elevated, liver counts are elevated, but the bright side is her white blood count is good. We've had the UTI since January. She has a strong adversion to the Lactolose so he was going to have to administer it an alternative method just to get it in her and he was going to do some blood cultures as well as find out why she is having the blood clots. I asked what her MELD score was and he said he wasn't sure that he was going to recalculate it with the new numbers from last night. I told him to throw in some bonus points being we are at Methodist every week it seems.
She has such bad trembles in her hands and legs so they put her on a bed with an alarm incase she gets up. I got home late last night and after I get the kids to school I'm headed back up there.
It upsets me that the doctors let this slip and didn't send her home, or even call in, a prescription for the Zyfax (not sure on spelling) to help with the Encephalopothy. I KNEW we would have this problem after they put in 3 MORE shunts in. I was asked to stay out of her medical decisions many years ago and to handle her financials after I tried to get her to get a second opinion 10 years ago...if not longer.
Hopefully the Lactolose has helped and we get the jaundice under control.
I'll post back up tonight.
Thanks for the prayers