Karen in Nevada checking in

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bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 3/5/2009 10:05 PM (GMT -7)   
Been a long time since I have posted. Really glad to see that John posted too.Take care of yourself John. Just haven't taken the time to read and or post and that reallly does upset me

Anyways, i have been feeling pretty good up until I came down with the flu this past weekend but I am actually thinking that it was a "flare up". I have monthly blood tests and they have been good. Saw my Hep Dr in January. She said she was very proud of me and that I was doing remarkably well

Reminder to you guys: Was dx with Hep C and ESLD, cirrhosis, brain fog, muscle wasting, severe muscle and joint pain etc etc back in Aug 2007 and was told I had about 6 months to live. I quit drinking 18 months ago and stopped smoking 8 months ago. Had TP eval last Aug and complied with all necessary tests etc. to be told that I wasn't a candidate yet...............

Anyways when I stopped smoking I substituted ice cream for my cigarettes and gained 20 lbs. I have been told to lose as much weight as possible by June and that they would like to try treatment. I have lost 9 lbs so far. Been walking 1-2 miles a day and working out to Richard Simmons sweatin to Disco at least once a week. I still have 2 boys, 16 and 18 at home. Lately been having some stressful times with them. Nothing drastic but........I have been very high strung for the past month also. Been seing a psych as requested and have more issues now than I thought I had. But this past weekend I just could not go no more. I got sooooooooooooooo tired and achy and miserable. Thought I might have the flu. Had an upset stomach also. But now that the upset stomach is gone I am still so achy and tired and exhausted and just want to stay in bed. I am afraid that if I start to rest too much, I won't want to get up. I have been stressing on getting tx because lately i have heard so much negativity.

What is all you guys' input?

Hope you all are doing OK

Karen
turn

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/6/2009 8:38 AM (GMT -7)   

Hi Karen,  you have been missed.  So glad that you posted and have been doing so well.  Congratulations on your 18 months sobriety and your stopping smoking.  It wasn't an easy accomplishment I know. 

Teenagers can be a handful sometimes.  Been there and done that!  So I can relate to that. 

Maybe you should call your doctor and see if he/she wants you to come in concerning your exhaustion.  Liver patients do tend to take longer to bounce back but better safe than sorry when dealing with this disease. 

Anyways is is good to hear from you and thanks for the update.   smilewinkgrin  .  

Thoughts and prayers........... 


Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 3/6/2009 8:41 AM (GMT -7)   
thanks for the advice !!

5Joan5
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 3/6/2009 12:01 PM (GMT -7)   

Hi Karen,

Good to hear from you.  I am glad you're taking care of yourself.   There's a saying, some of the best lessons are learned at the worst times.   I think taking care of yourself is one of those lessons we learn when we or someone we love is going through a health issue like ESLD.   Walking helps me to keep centered.   If you're getting in 1-2 miles you'll be feeling the benefits of that soon!    It gives you time to think and makes your body feel better.   You probably need more rest, but I can understand that fear of not wanting to stop resting.   It must be so hard.    Take care.

Joan

 

 


Joan
 
Best friend is in ESLD, has HepC and cirrhosis. 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/6/2009 5:36 PM (GMT -7)   
Hi, Karen!  Welcome back!  I hope you will soon be feeling better.  I have been wrestling with the idea of treatment, also.  I get blood work and a CT scan the beginning of April and see my hepatologist the next day.  I will ask her some questions at that time, but I am really reluctant to do treatment because of all the negative side effects I've heard about.  Let us know what you decide.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 3/6/2009 8:23 PM (GMT -7)   
When I first was diagnosed with all of this, I sent for, made phone calls and picked up any and all info on treatments etc. One in particular stands out in my mind although, I do need to start re-reading all my info. It is www.beincharge.com . If you go to their site and sign up they will send you info and also have a 24 hr registered nurse than will keep in touch with you as well as you can call them 24 hours a day if you need advice during treatment. Also I believe the HCV Advocate has materials they can send you. I don't know about you, but I not only like to read the info on line, but have actual reading materials in hand. It helps with the confusion rolleyes idea idea
For those of you who have done treatment or are doing treatment, which one are you doing or did do and your personal experience with the treatment(s) smhair

Karen turn

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/6/2009 10:10 PM (GMT -7)   
Karen, thanks for the info!

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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