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Frightened Daughter
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/10/2009 12:23 PM (GMT -7)   
Hello Everyone! My Mom was diagnosed with Cirrosis of the liver. She got it through Hepatitus C. She got Hepatitus C about 30 years ago from a blood tranfusion. She also has very, very low blood platteles and cannot take any antibiotics, or medicines. She has had about 6 endoscopies and just last week had a biopsy of her liver. We get the results in a couple weeks. I want to know if anyone knows how long people live with this disease? She eats very healthy, does not drink any alcohol and tries to remain active. Thanks for your help!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/10/2009 1:56 PM (GMT -7)   
Frightened Daughter, welcome to the forum, though I'm sorry you have to be here.  Your question is one that is asked the most frequently and the one to which a definitive answer is impossible.  Hep C and cirrhosis puts one at high risk for liver cancer, bleeding varices, ascites and edema, encephalopathy, and other problems.  Age also plays a factor, as do other health problems a patient may have, such as diabetes and cardiac disease.
 
It is not the cirrhosis that kills a person, it is the problems that develop as a result of cirrhosis.  Of course, if one goes into liver failure, then a transplant is needed or the patient will die.  However, there are usually a series of events that take place prior to that.
 
I contracted hep C 40 years ago.  I was diagnosed in 1993.  Aside from overwhelming fatigue, I had no symptoms.  Then, in '05, I was diagnosed with liver cancer.  Mayo Clinic saved my life and it has now been almost 2 years that I have been cancer free.  I do have mild cirrhosis and a risk for recurrent cancer.  I've dealt with ascites and edema, but thus far have escaped varices and encephalopathy.  With so many possible problems with hep C and cirrhosis, you can see that each case has to be evaluated individually.  Even then, it's difficult to say how long a person will live until they get really, really bad and into liver failure.  If you will read some of the educational threads, you will find some answers to your questions.  You will also get a lot of support from the wonderful people here.
 
It is good that your mom follows a good diet.  That is of tremendous help.  Aside from that, regular followup with a hepatologist and compliance with the doctor's plan of care can help her to live many more years.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/10/2009 5:25 PM (GMT -7)   
Hello Frightened Daughter. I just want to welcome you to HealingWell as Connie has already answered your question. I am sorry that your mom has this disease. I know how terrified you must be. Just keep getting educated on it......so that you can be an advocate for you mom when she needs it.

Take care......thoughts and prayers........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Frightened Daughter
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/10/2009 11:15 PM (GMT -7)   
Thank you so much for your responses! I really appreciate the support! The information you provided Hep93 was VERY helpful. I am sure I will have more questions for you as time goes on. I am so glad I joined this forum. I appreciate your openness and honesty. Take care of yourselves, Frightened Daughter

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 4/11/2009 5:44 PM (GMT -7)   
Hi Frightened Daughter. I just wanted to take the time to welcome you to the forum. You have really found a great place for support and knowledge. I came here looking for the same answers myself. Connie and Pink Grandma were the first to welcome me. They are wonderful, caring people who have had to deal alot with liver disease. There are many others here also that are always ready to help. I'll be praying for your mother.
Butterflythree
 
There is always hope!

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