What will I be facing?

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bearhug
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/18/2009 8:39 AM (GMT -7)   
rolleyes  I am new to this site and new to dealing with treatment. I am geno type 1.  Treatment will begin in May. I have read info from the Doc and it saddens me very much.  I only pray that I wiil not have severe side effects. The end of April I will be getting 'training'.
I have no ill effects from the HCV currently, found out I had it when I tried to donate plasma.  So it sucks to think I am going to purposely make myself sick.  Any words of encouragement?

"bearhug"


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/18/2009 8:53 AM (GMT -7)   
Hello BearHug and welcome to HealingWell. I am sorry that you have to deal with this disease, but am glad you found us.

It really helps to talk to people who truly understand your fears and concerns. I have bumped up some of our educational posts that may give you additional information. They should be right below this thread. The best thing you can do for yourself is to get educated and be very proactive in your healthcare.

I don't know a whole a lot about the treatment that you are about undertake but we have others here who have loved ones or themselves have been through treatment. Hopefully someone will respond soon.

Hang in there.........thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


bearhug
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/18/2009 9:05 AM (GMT -7)   
Thank you for responding.  I will post more when I actually start and let people know exactly what I will be on.  I appreciate very much have somewhere to go talk with others.  There is no one else in my community that I know who is going thru this so this site is a wonderful find.

"bearhug"


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/18/2009 12:12 PM (GMT -7)   

Hi, Bearhug!  I'm glad you found us!  Welcome!  I was diagnosed with hep C in '93 (thus my screen name.)  At that time, the only treatment was interferon.  I tried it, but after about 6 wks. was taken off treatment by my doc due to very low white counts.  Prior to taking me off, he had tried cutting it from 3 to 2 x a week and also cutting the dosage, but the white counts still remained very low.  I tried it again a couple of months later, but the same thing happened.  At the time, I was where you are--no effects from the hep except for fatigue, which is why I was tested in the first place.  Anyway, I went on my way with no treatment.  I had blood work every 6 mos. and a sonogram once a year.  A sonogram in '95 revealed a VERY large tumor in the right lobe of my liver, thought to be HCC (hepatocellular carcinoma.)  It was.  Long story short, there was nothing they could do at Shands, so I went to Mayo.  Mayo literally saved my life through chemoembolization and a study drug, TheraSphere, to shrink the tumor.  It had metastasized to the inferior vena cava, but the treatments shrunk it back into the main tumor.  They were then able to operate to remove the entire rt. lobe of my liver.  At that time, they also did a biopsy of the left lobe and found cirrhosis. 

It has been nearly 2 yrs. that I have been cancer free.  I am genotype 1, also, and am on the fence about treatment.  It would be the best thing to do to prevent a recurrence of cancer, but it is a very rough thing to go through.  As your doctor probably told you, genotype 1 is the most difficult to treat.  In addition, treatment only works in about 50% of cases.  So the odds are not great.  However, if you want to give yourself a shot at a longer, healthier life, then treatment is something to seriously consider.  You don't say how old you are (I'm 66), but that can also play into your decision.

Do your research and I hope you are led to the decision that will be best for you.  Please post and let us know what you decided and how you are doing.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bearhug
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 4/18/2009 2:46 PM (GMT -7)   
Thank you for your response and sharing your story with me.  I am 54 yrs young and have decide there is not time like the present to try this. I will post when I actually begin as I am sure I will need to share smilewinkgrin
"bearhug"


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/18/2009 6:08 PM (GMT -7)   

I would really appreciate your posting your experience with treatment!

Good luck!


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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