Post Edited (smileytex) : 4/20/2009 9:25:55 AM (GMT-6)
Eva, I'm glad that you found us, but sorry that you need to be here. Yours is certainly an unusual situation. At this point, are you just separated? Is it legal or did he just leave? Was the marriage in trouble before this, or did he just decide to move out because of his diagnoses? Every person has the right to decide if he/she wants treatment or not. You might want to retain a lawyer to see if you can get access to his medical records. This might be a possibility if you are still married. However, even knowing what is going on may not be of much help if he doesn't want treatment. Has he stopped drinking?
For the moment, the best thing you can do is to read some of our educational threads on the main Hepatitis page (they will have Education in the title or Symptoms.) Sleeping a lot and getting days and nights mixed up is very common. As to the weight loss: Is he taking any diuretics? This can cause an immediate drop in weight if he was retaining fluid. He could have encephalopathy if his ammonia is elevated. There is an educational thread on that, as well.
You will get a lot of support and information here, so please come back often.
Post Edited (hep93) : 4/20/2009 12:34:28 PM (GMT-6)
Eva, I think there is a big concern about leaving your young children with him unsupervised. You may need to have the visitation order altered, if there is one, to not allow him to be alone with either or both of them due to his medical condition. The personality changes could be either elevated ammonia or the bipolar disorder. Is he taking meds for the bipolar?
I think the only thing you can do is to tell him what you have told us: Essentially that you want to help him in any way possible, and ask that you be let into his life to help him deal with the disease. Of course, you would do this when he is calm and in a receptive mood. Due to the memory problems, he really needs someone with him during the doctor visits. about the itching and the doctors not picking up on that being related to liver disease: Primary care docs, and others not specializing in liver disease, are not really knowledgeable about the disease.
I wish I could offer more help, but without his cooperation you are very limited in what you can do for him.