Hi, 4catzlover. I am glad you found us and decided to post. I think Mrsquickgt has given you a good alternative suggestion for the Lactulose. Trying to keep everything in balance is extremely difficult. Is there a reason your mom is seeing a GI doc rather than a hepatologist (liver specialist?) Also, family care/primary physicians really don't know much about treating liver disease. It sounds like your mom's liver was already damaged and then she took it over the edge with the methotrexate use. Liver disease like this is definitely better handled by a hepatologist, as a GI doc and especially a PCP may not have ever seen this type of patient previously.
You will find a lot of info here and especially a lot of support.
Hang in there!
Hi: So sorry about your mom. I am almost exactly in her situation. Xifaxan is supposed to kill the bad bacteria in the intestins. When I went for my check up last year I was taking 8 Tbs. lactulose (constulose) a day,and confined to the B/Room. The hepatologyst I saw at that time (I have three of them) told me to take 2 Tbs. lactulose and 6 Xifaxan a day. That helped the B/Room visits did'nt seem to do much else. I also take about 35 pills a day. Vitamins, Suppliments, Blood Pressure pill and suffer the pain of every artiritis except RA. I had my gallbladder removed about 30 years ago , was told I had damage, but being young and unaware of the whole issue just went on with life. Had Hep.A when I was about 10 . BP problems since 27 (had blood work done for that evey six months and it never showed I had elevated liver issues . Took tons of Tylenol . NO MORE. for pain while I was trying to make it to retirementWas fine till one day I in 2006 I had to b hospitalized with severe encepalopathy for a week. It took them six months and two biopsey"s to figure out that I had cryptogenic liver disease and sent me to get eveluated for a liver transplant. I only had the foggy encepalopathy for about a year. Now I seem to be rather clear minded. I have insomnia. I don't eat meat. Protine I get from peanutbutter, nuts , beans , white cheese, ice cream and soy milk , tofu, eggs and occationally chicken, I was in an auto accident late March ended up in hospital mostly shock. MY ammonia was about 85. When I went for my yearly exam for my liver 2 weeks later, I was clear minded and had ammonia at 158 about. The Dr.'s that saw me noted that I was very quick to responsd and very well in my thinkin, all other blood work was very normal. They just don't understand the ammonia. Also take a pill for depression, which I have never asked for , they seem to think it will help my anxiety issue (which I have had for many years) Even more so now. They said everything looked great BUT due to the disease being cryptogenic I could get severly ill within 48 hours and need a transplant. Have you cheked you moms MELD score . It will help some and you can do it youself by doing a search on MELD and entering your moms criatinine , bilirubin , and INR score. The number will tell you more or less how bad off she is.mine has been between 9and 10 and really am not yet in need of a transplant as I said before all could change. I'M 57 and so very sick of going to DR.s I seem to have an appointment every week. Just for someone to check me out. Good Luck I know I space out at times . That's just me. I used to love to cook for everyone, now it isn't fun. It's just another chore. For two. But then again Even though I eat so many veg. and fru. I have gained weight, and it isn't water. june (I don't like to edit so excuse errors)
Post Edited (june17) : 4/25/2009 11:21:44 PM (GMT-6)