Hi, Worried Girl, and welcome to the forum. Has the doctor mentioned hep C treatment for your mom? How much Lasix is she getting? It could be that she needs a higher dosage. Also, she should NOT be eating burgers...not even a small one. Red meat is the worst protein for the liver...very hard to process. My suggestion would be to curtail her sodium intake (look at labels...canned veggies have a lot, as do soups.) Use lemon juice instead of salt or use a salt substitute. As for the stages and grades, I can't tell you. It just indicates the degree of scarring. fibrosis is scarring. Genotype 1a is the kind most hep C sufferers in the U.S. have and it is the hardest to treat.
I assume your mom is not drinking? Unfortunately, you are right about the poor care w/o insurance. I hope that your mom will soon get Medicaid, although that's not the best either.
She can go higher on the Lasix, but potassium or Aldactone should also be increased along with it. Ask the doctor about raising the dosage of the Lasix and Aldactone or potassium.
The stages/grades don't mean as much as her overall symptoms and how she is doing. When a person has the symptoms you are describing, it is known as decompensated cirrhosis. This means the liver function is poor. Has a transplant been discussed?
I suggest you read some of the educational posts on the main page. There are quite a few and they will give you some answers to your questions until you can question the doctor.
Post Edited (hep93) : 4/27/2009 7:07:08 PM (GMT-6)
caring 4 mama, I would suggest that you get hospice involved. The doctor will have to tell them that she has less than 6 mos. to live. They can then provide nurses to come to the home and can get her pain meds. Doctors always bow to whatever hospice recommends.
In regard to Power of Attorney, it would enable you to have access to any bank accounts she might have in order to pay her bills. You would basically be acting as though you were her. However, I believe you also need a Medical Surrogacy, in order to have a say in her medical care and to access her medical records. Does she have a Living Will? Medical Surrogacy is usually a part of that. Persons I've known who obtained PoA did so through a lawyer. I don't believe you can do so just by filling out forms and having them notarized, as you can with the Living Will. If she doesn't have a LW, that is the first thing you need to do.