Hi, Areeland, and welcome! We are glad to have you here. I know we can be of help to you, both for support and information. How long have you been on the waiting list? Do you care to tell us more about your disease?
I have hep C and cirrhosis. I also had liver cancer that metastasized to the inferior vena cava (large vessel.) However, thanks to Mayo, I have been cancer free for nearly two years. I live alone and this is my support group.
I hope to hear more from you!
Areeland, which Mayo are you going to? I go to the Jacksonville, FL one and also live here. In fact, I would move to the Gulf Coast if it weren't for my liver disease and the need to stay connected and close to Mayo. The good news is that Mayo has the shortest wait list in the nation for transplants.
You might want to look for a live support group in your area. That would be a great place to get to know some people who would understand your condition.
I suspect that some of your weight is from fluid retention and/or ascites. Are you on diuretics? Have you restricted your sodium? Are you able to exercise or walk much?
Post Edited (hep93) : 5/17/2009 7:17:31 PM (GMT-6)