Hi, Canyongirl, and welcome to the forum! I'm so sorry that your SIL and her family are having to go through this. I'm sure you are pretty well informed on what lies ahead.
First of all, she should apply for Medicaid and SSI. Since her b.f. doesn't make much money, she would likely qualify if she has medical evidence as to how sick she is. The qualifications vary somewhat from state to state. In FL, if there are no minor children at home or one isn't blind, etc., then there generally must be proof of disability from SS.
daughter in law, welcome to our forum. Thank you for a very nice first post. That "crabbiness" and "delusionary comments" you spoke of could be from high ammonia levels. Is your MIL on Lactulose?
I would like to ask that you start a new topic to introduce yourself and your situation to all the other members. It's easy to go unnoticed when you reply to someone else's thread. (Just click on New Topic instead of Reply.)
Canyongirl, thanks for the update. I'm glad that N is being referred to a GI doc, though a hepatologist would have been even better. A primary care doctor is just not that knowledgeable about liver disease, so it's good that she will get an opinion from someone better able to deal with that. He will also probably order a CT scan.
Please keep us updated.
Bestthief, according to your posts on Healing Well, you seem to advocate LDN for everything from multiple sclerosis to Crohn's disease. Yet it is not commonly available in the U.S. and is not being used as accepted treatment for liver disease.
My advice would be to stick with reputable doctors and clinics and PROVEN treatments.
CanyonGirl, she may need a nephrologist (kidney specialist) to address the kidney mass. Since the doctor she saw is at the Liver Center, that is what he is going to deal with--the liver. She needs to make an appt. with a nephrologist about the kidney mass, and not wait months until she sees this liver doctor again.