Hi, Sad. Welcome to the forum! I'm so sorry that you have been diagnosed with ESLD. However, you will find a lot of information and support here. Have you checked out our folder of Hepatitis Resources at the top of the page? There are some educational threads in there that should help you.
You don't say what your current symptoms are and how (or if) they are being treated. Do you know if your ammonia levels are high? Are you on Lactulose? How much are you sleeping? Are you able to do ADLs (activities of daily living), such as making meals, keeping yourself clean, doing housework, etc.? Are you working or at home? All of these and much more determines how much care you need at this time and what type of care. In instances where there is truly less than 6 mos. to live, Hospice can be called in for both respite and nursing care, as well as medication. Are you in pain? Exactly what is it that you and your husband are arguing about?
I'm very glad that you stopped drinking a year ago. Congratulations! I am a sober alcoholic myself (almost 23 yrs.) and have hep C. I survived liver cancer, but the hep C makes me extremely fatigued, regardless of how much sleep I get. However, I manage to do most things for myself and by myself.
What Transplant Center are you going to? Have you asked them point blank what your prognosis is at this point?
If you can give us a bit more information, it will be easier for our members to offer suggestions or advice based on their own experiences and knowledge. Also, it would help if you would not post in blue, but black...which is easier to read.
Post Edited (hep93) : 5/28/2009 2:33:24 PM (GMT-6)
Post Edited (june17) : 5/26/2009 3:23:50 AM (GMT-6)