Moving, need your imput please

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Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/31/2009 12:07 PM (GMT -7)   
Hi all, we are relocating from California to Mobile, Alabama the end of July and I am very concerned about my husband being up too this! He is currently on the liver transplant list in San Francisco and his coordinator said he should be ok for travel and that he might have a better chance of getting a transplant in Alabama. Has anyone had any experience with flying with a chronically ill person and is there anything I need to arrange before hand, I'm worried sick as he gets ill just driving for a few hours. I would appreciate any imput,


Judith

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/31/2009 1:07 PM (GMT -7)   

Hi, Judith.  If he is stable enough to fly, he should be okay.  Hopefully, you can get a nonstop flight so that it won't take forever to get there.  Are you going to hook him up with a transplant center in Mobile and have all his records transferred?  Is this being done prior to the trip?  I would be more concerned about him being without medical care in Mobile than the trip itself.  Just be sure to take all his medications in their original bottles in your carry-on luggage.  PUt them in a quart plastic bag (or more than one, if needed.)

Make sure he has no procedures done in the 2 weeks prior to flying.  That way, he should be okay for the trip, though I'm sure it will be very tiring.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 5/31/2009 7:58 PM (GMT -7)   

Hi Judith,

 

I’m sorry you are being uprooted in the middle of this crisis.  I agree with Connie, you need to ensure his medical records are sent ahead of time.  I did look at the centers in that area.  The closest to you are in New Orleans (less than 2 ½ miles from Mobile).  Birmingham is nearly 4 hours away and Shreaveport is over 6 hours away.  Below are the two centers in New Orleans.

 

LAOF - Ochsner Foundation Hospital

New Orleans, LA

(504) 842-3925

LATU - Tulane Medical Center

New Orleans, LA

(504) 588-5344

 

I’m sure the center in San Francisco has experience with patient moves.  They’ll probably be able to set him up with an appointment shortly after you complete your relocation.

 

I know this will be a very stressful time for you.  The more pre-planning you are able to do, the less you will be stressed out about the move.

 

Take care and God’s speed.

 

Penny

 


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/1/2009 8:53 AM (GMT -7)   
Thank you Connie & Penny,

His transplant coordinator told me that all his records will be transferred and that he will get credit for the time he has been listed, I have already researched the GI doc's there and believe I have found one and he is also accepting new Medicare patients. My main concern is the actual planning for the flight there, I want him to be as comfortable as possible, this is very stressful and I hope I haven't made a mistake by up-rooting him but our daughter and grandsons are moving there and the thought of being here without my family is just too much to deal with!

Judith

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/1/2009 10:00 AM (GMT -7)   

I'm sure that Penny meant that New Orleans is less than 2 1/2 HOURS from Mobile, not miles.

Judith, when you make your reservations be sure to request a wheelchair (unless your husband has his own.)  I did this when I went to NY last year and will do it again when I go this summer.  This way, they have someone with a w/c meet you at the ticket area (you may have to remind the person there) and that person will wheel your husband to the gate in SF.  When you arrive in Mobile, there should be someone waiting with a w/c at the gate.  If not, request this and they will send someone right away.  That person will then wheel your husband to baggage claim and then to the curb.  Since there is SO much walking in airports, particularly large ones, this was a lifesaver for me.  You don't need any kind of medical documentation--just request the w/c at the time you make reservations.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/1/2009 8:29 PM (GMT -7)   
Hello Judith.........I am sorry that I am going to lose my neighbor......as I am in California also. But I understand why.....I don't know if I could be away from my kids and grandkids either. Have you talked with his transplant doctor? He might give you some ideas of what to take, what to do, when to fly, etc that would make it more comfortable for your husband.

Do you have any idea about when you will be leaving? You know that you also need to take care of you too.......

Thoughts and prayers............
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/2/2009 9:18 AM (GMT -7)   
Hello back P.G., We have an appt. today with his doctor in San Francisco and I have quite a few questions! We are staying with our daughter and grandsons and I am helping her pack for the trip, there is so much to do. We are planning on leaving the last part of July so I am praying that my husband will be up to this, I also have a min. Schnauzer that I have to fly back and have been worried about that too, think I'm getting too old for all this!!! Anyway, his transplant coordinator thinks that he will have a much better chance for transplant back there so hopefully this will all work out. Calif. Pacific Med. Center has done a great job keeping my husband "stable" as his MELD has gone from a 19 to an 11 this last year but I think his chances are pretty dim for the procedure there! I just know that I couldn't go through this without my family.

Judith

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/2/2009 9:26 PM (GMT -7)   
Judith CPMC is where my husband was treated also........what's the first name of his coordinator? I liked most of the doctors there. At least the hepatologists.........the cancer doctor there wasn't any help though. I loved the hospital nurses. They were the tops. I think that it will be a good choice for your husband......so that he can get a transplant quicker.

Take care..........thoughts and prayers for a safe and comfortable flight..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/3/2009 2:32 PM (GMT -7)   
Maybe I misunderstood.  I thought Judith said her husband would have a better chance of getting a transplant in Mobile, and Penny therefore listed the centers there.  ???

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/3/2009 7:02 PM (GMT -7)   
No, Connie you misunderstood me. I meant she made a good choice going to Alabama. I should have be clearer. That's what happens when I get over tired. I know what I am trying to say but no one else does. LOL
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/4/2009 7:35 AM (GMT -7)   
The first name of his transplant coordinator is Tammy and we saw his doctor at CPMC yesterday, he was great dictated a letter to the doctor in Mobile and is going to transfer all my husbands records there! He actually knows the doctor and seemed to think very highly of him, thank goodness for the internet turn

Judith

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/4/2009 12:03 PM (GMT -7)   

PG, thanks for the clarification.

Judith, that's good that his CA doctor knows the one he is referring your husband to.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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