Hello, all!! I have not checked in for a while, but I do think about everyone here daily. I have had my hands full dealing with the medicaid issues, etc for my husband. He lost his ssi/medicaid because of my salary effective 6/1/09. So, of course that set off a whole chain reaction of events....mainly getting him put on inactive status on the transplant list- Ughhh! After much fighting w/ medicaid, and the state buy in or spend down program, I finally made the decision last week to just add him to my insurance through work. This was a very scary step for me, because the cost to do that will leave with almost nothing to live off of! VERY frustrating! So, now he has my blue cross/ blue shield of TX plan, and we are trudging forward. I am in the process now of trying to find a DECENT primary care doc, etc, getting him put back on the list, etc. IN the meantime, his health is just in a steady "yucky" state. Not any better, not any worse...with the exception of us getting the seizures under control. He mainly sleeps all the time. Have not had any bloodwork done lately, because of the insurance crisis....but, that will be one of the next appointments I make now that I have all that cleared up. He is cranky most of the time, so I am trying very hard to not take it personally.....it just gets old listening to the same whining and complaining on a daily bases........so, I am planning a trip to GA at the end of July with a small side trip to the mountains of NC for a day or two.....a much needed break for me. I have not had a "vacation" in about 5 years....this August will also mark the 5 year mark for when my husband was diagnosed. I am to the point that I am just tired! Tired of this disease, tired of all the stress and the toll it has taken on my household. So, thinking the vacation is in order.
Sorry, guess I just needed to blow off some steam and whine a bit!!
Hope all of you are doing well......