Another thing to deal with

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moonroe
Regular Member


Date Joined Jun 2009
Total Posts : 30
   Posted 7/15/2009 4:29 AM (GMT -7)   
    Moonroe here, found out yesterday my husband now has portal pulmonary hypertension.He will have a cath done on Monday to see how high the pressure is and whether he needs oral meds or a pump. Just great huh? One more thing he has to deal with. He had fluid drained less than a week ago and already needs it done again.He just cannot seem to catch a break. Everyday I wonder what the heck is going to be next. He goes to see his GI doc today.I have a ton of questions and I want some answers. We will see. He also has a mri in Aug and goes to a hepatologist in Aug. I really think we need to move things along here because in my opinion he is not doing so well. I am tired of everyone dragging there feet.  I think I am done ranting now,sorry. I have to say,I love this forum.It has helped me so much. Thank You everyone for your info and support. Oh ,I almost forgot,My mother had an mri done Sat and they found a mass behind her intestines.She goes to oncologist the 30th for consultation. She is 89 but very spry.Could use lots of prayers and good thoughts.Thanks to everyone, Mimi

BarbL64
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 7/15/2009 10:07 AM (GMT -7)   
You're in my prayers.  It does seem to pour when it rains.  Once the liver starts failing you'll find that other parts of the body start to go.  My sister has volume overload with her heart causing fluids to build up.  She has had to get the fluid surgically drained twice.  The doctor said it was from the liver failure.  Her kidneys are also not fully working, (I can't remember the name of the disease)and the kidney problem is fatal so my sister won't last much longer. 
 
Hang in there, hopefully your mom will only have to have some radiation and be done.  I'll keep you in my thoughts.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/15/2009 11:17 AM (GMT -7)   

Moonroe, not that it's much consolation, but that's a fairly common occurrence with end-stage liver patients.  A diseased liver affects other organs.  Aug. is just around the corner, but you might want to see if you can get his appts. moved up.

I hope that your mom will be okay.

Rick, that was a beautiful and powerful post.  Be careful out there in this heat.

Barb, the term you're thinking of is probably hepatorenal disease or syndrome.  It's a consequence of progressive liver disease.

Hugs to all,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/16/2009 10:31 PM (GMT -7)   

Hi Mimi,  I know how you are feeling.  I feel the same way about my brother's situation.  Never know when something new is going to pop up. 

Mimi, take care of yourself,  you must be worn to a frazzle.......I know I am.  I am going to take my granddaughters to the water slides Saturday........I can't wait.   I am going to leave my worries at the gate and be a kid again for a few hours.  

Barb that goes for you too.......take care. 

 

Lot's of thoughts and prayers for you both and your loved ones.

 


Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/17/2009 1:46 PM (GMT -7)   

PG, have fun!  Sounds like a good way to stay cool!  It's sweltering here today.  eyes

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


moonroe
Regular Member


Date Joined Jun 2009
Total Posts : 30
   Posted 7/18/2009 10:49 AM (GMT -7)   
Thanks Pink Grandma, Yes I am worn to a frazzle. They put husband in the hospital on Wed. His blood work was all out of whack.Sodium levels were very low. Just brought him home today.I think it is Sat. Not sure.I have been staying at the hospital during the day and going to work at nite. Had to get someone to cover a couple of shifts,so I did miss some work. I sure can't afford that. He his very weak and I have to go to work tonite.Afraid to leave him by himself,but I have not choice.I am hoping he will sleep most of the time.They sure don't let him rest in the hospital. I am glad you are able to get in some fun time.I don't spend enough time with my grandkids. Just can't find the time.You have a wonderful day. Mimi(moonroe)

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/18/2009 10:19 PM (GMT -7)   

Hello Mimi and Connie,  I did have a wonderful time with my granddaughters and daughter and son-inlaw.  My youngest who is only five almost drown me in 2 feet of water in the tide pool.  She kept jumping on me while the tide was going and I was laughing so hard I kept going under and couldn't get up.  I haven't had that much fun since..........well....I don't know when.  I am going to make a point of taking them every year.

Mimi,  I had to work like you when my husband was sick......I didn't miss much work either......all his doctors appointments were planned in advance so that I could take vacation days........if I missed work because we were at the emergency all night,  I would make it up by staying late or working an extra day that week.  I applied for FMLA to save my job if I did start missing a lot of work. When all hope was gone and I couldn't take the stress of his eniment death I went out on state disability for stress about 3 weeks before he died.  Actually my girlfriend took me to the doctor and spoke with him.  I was such a basket case all I could do was cry and nod.   

You mentioned grandkids.........do you have an kids that might be able to help you out by staying the night sometimes......or maybe does he have any siblings who would be willing to help out.  Don't be too stubborn to ask for help..........my stubborness almost killed me.  No joke.  I thought that everyone should know that I needed help and would offer assistance......since they didn't I became too stubborn for my own good and wouldn't ask anyone for help.  I learned my lesson though.......I am asking my brothers and sisters for help with my sick brother........I still do the bulk of the leg work and visiting but they are helping somewhat too but I have to push them.  It's more help than I got with my husband.

Take care.........get some Mimi time in.  I know that it's hard but you really need to take care of you as well.  If you end up sick........you will be no help to husband.   Do something you like......read a magazine,  go for a walk or a bubble bath.  It doesn't have to be anything big or expensive...you be surprised ...........15-30 minutes here and there to yourself does help.

Thoughts and prayers............ 


Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/19/2009 11:26 AM (GMT -7)   

PG, I'm glad you had such a great time!  You needed it and deserved it, that's for sure.  And you built some memories for your grandkids.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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