could you tell me a little about your self and the disease you have :)

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 7/27/2009 5:34 PM (GMT -7)   
Just wondering, very new to this forum but have been active on the CD/UC forum for six months now.
And there I see just people dealing with the Disease, but here I feel like there are more people taking care of people with hep problems.

Would you be so kind to introduce yourself and tell me a little about you and your Disease or the one you are taking care of :)

And if this tread already exist would someone be kind enough to send me the link

I am going to start.

My name is Thordis and I am from Iceland I am 24 years old and live with my fiance and two dogs (Standard Poodle)
At the moment I am on disability but I plan on going to college this fall to learn history.
I have been sick now for 10 months and my doc dx me with UC and then Auto immune hepatitis so I have both.
I cant feel the hep since it was discovered very early on, just by luck, had some random blood test due to UC and this showed up so I had a liver biopsy and this was the result :( I am still sore in the biopsy spot one week later but dont have any AIH symptoms except form crazy joint pains and stiffness.

I hope that I will be good and healthy one day :)

look forward to hearing from you guys ;)
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/27/2009 6:24 PM (GMT -7)   

Hi, Thordis!  You might very well be our first member from Iceland!

My name is Connie and I have chronic active hep C and cirrhosis.  I also am a liver cancer survivor (cancer free for a little over 2 years now.)  I contracted hep C through IV drug use in the 60s, but wasn't diagnosed until 1993.  The cirrhosis and liver cancer were a direct result of the hep C.  I have been married and divorced twice.  I was married when I was diagnosed with C and it did cause problems...mainly because I could no longer work FT, due to fatigue.  It wasn't the only reason we divorced but it was certainly a contributing factor.  I now live alone.  I had both my elderly cats put down in the past month and that was very difficult.

You are very fortunate to have been diagnosed early with your disease.  I feel that you are going to be okay, with treatment.  I am a little concerned that you are still sore a week after your biopsy.  Please do mention it to your doctor.

We're glad you are here!

Hugs,

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


itsme
Regular Member


Date Joined Mar 2007
Total Posts : 44
   Posted 7/27/2009 8:40 PM (GMT -7)   
Hi Thordis,
My name is Rhonda, I am one of the few AIH people here. I am a 46 year old female, diagonsed about 2 years ago.  It has been a long battle, but thankfully I am stable now. Currently I take 50Mg of Imuran once daily.   I have been to hell and back with this. But like I said I am under control now.
 
My story is long, the condensed version is I turned yellow, my liver functions were "off the charts" according to my GI. I was put on 60 mg of prednisone, and that shot up my blood sugar and I became a "prednisone induced diabetic"  It took about 1 1/2 years to finally wean me off the pred.  I have seen 3 different Doctors, and had 3 different opinions from -You will  need a liver transplant in 5 years, to take the Imuran and you will be fine.
 
The bottom line, is I don't think they know for sure. But I am under control now. The only issue is fatigue from the Imuran, which is significant.
 
Iceland !!!  Acutally I have been there. It is a beautiful country.
 
If you have any questions you can post here or click on the envelope on the left side of the screen by my name- itsme and you can e-mail me.
 
I am glad you found this forum, it will help you and answer questions for you, the people here are wonderful
 
Regards,
Rhonda
 

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 8/8/2009 9:50 AM (GMT -7)   
Hello Thordis and welcome to the Hepatitus forum.

I was a caregiver for my husband who died of liver disease back in 2007. Most recently my brother was diagnsosed with cirrhosis due to hep C and passed away last week. He also had emphsema which was the main cause of his death.

You may want to read our educational thread in the Hepatitis resources on the front page of our forum. It has a lot of good information. Also if you read over some of our older posts you will find us to be a very compassionate knowledgeable group.

Again, glad to have you posting on our forum...........thoughts and prayers......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/12/2009 1:10 AM (GMT -7)   
Thanks pink grandma :)

I am sorry for your loss. Hope you are doing ok. Must be so hard.

Big hugs and good thoughts to you
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

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