I am really sorry to hear of your husband's condition. However, I agree that you should not lose hope and should continue as though he will get a transplant. In view of the fact that it will be another 5 mos. or so before he is listed, how about having him discharged to a NH in the meanwhile. If you tell the doctor that there is nobody to be with him in the evening, perhaps that will be enough reason (along with the fragile health) for him to be placed in a NH, at least until he gets a little better. It makes no sense for him to come home and then have to be hospitalized again in a few days, because he fell or something else happened while he was alone. If that is not possible, then I think Shelly's suggestion to speak to the hospital SW is a good idea. Explain your situation and see if perhaps there might be volunteers who could stay with him.
Please do keep us updated, and feel free to ramble or vent anytime.
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"But that was yesterday, and I was a different person then."
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