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Gwen75
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/8/2009 2:30 PM (GMT -7)   
Hello Everyone.
 
I have been lurking for approximately a week and just thought I would introduce myself in the interest of not being rude.
You may call me Gwen (not my real name, of course).
Last week, a very dear friend of mine was diagnosed with cirrhosis.
I, of course, was deeply saddened.
Stumbling upon these forums was a blessing (to myself and countless others, no doubt), as I have learned much from the posts.
For that, I thank each of you who contribute.
 
Best,
Gwen
 
 

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 8/8/2009 2:41 PM (GMT -7)   
Hello Gwen and welcome to HealingWell. Sorry that your friend has been diagnosed. What a good friend you must be to go online and research it. Have you read our educational thread in the Hepatitus resource post on the front page of our forum yet? It has lots of good information in it.

Again welcome.......thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Gwen75
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/8/2009 3:05 PM (GMT -7)   
Yes, I have read almost all the posts.
Thank you for the warm welcome and helpful information.
I didn't wish to put anyone off by hanging around and not introducing myself.  :-)
 
She is really much more like family than just a friend.
The information I have received indicates that the situation is terminal.
I have never experienced the loss of a friend before, so I find myself in uncharted territory.
 
My concern now is for her family.
It seems as though ESLD can be a slow and painful process.
The best I could do is to offer my unconditional support, which I have done.
 
I am a realist, although it gives me some hope to read that some have defied the odds.
If anyone has any further advice on what to do (or not to do) to help at this time, it would be appreciated.
 
Again, for the comfort this forum gives to many -- my sincerest thanks.
Best,
Gwen
 
 
 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/8/2009 4:28 PM (GMT -7)   

Welcome to the forum, Gwen.  I'm glad you introduced yourself.  Cirrhosis has many causes and the cause can affect the prognosis.  For example, if cirrhosis is caused by alcohol abuse and the patient continues to drink...the outcome is not good and will hasten that patient's demise.  However, if one has cirrhosis from a fatty liver or AIH, it is possible to have a good quality of life with proper medication, diet, etc.

I am one of the posters you mentioned who has survived the odds.  Although diagnosed with hep C in '93, I didn't get a diagnosis of cirrhosis until '07 when I had liver cancer.  Nevertheless, I am doing quite well in comparison to some others, with the only symptom being extreme fatigue.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Gwen75
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/8/2009 4:51 PM (GMT -7)   
 
 
Hi Hep.
 
Your posts have indeed given me hope.
I am very glad to hear that you are living comfortably.
 
Unfortunately, the cirrhosis is, in fact, due to alcoholism.
She is in the end stages, as she has ascites and encephalopathy.
At this point, I do not have specifics other than what I have just shared.
 
It is difficult enough to see a loved one suffer from a progressive illness, but when they continue to look for love and solace in the bottom of a bottle of booze -- well, it's just downright maddening.
 
Maybe this will be the catalyst she needs to change her life.
I sure hope so.
 
This seems to be a good place, with supportive people.
I will keep you updated, if you don't mind.
It feels good to vent.
 
May you all continue to experience health and healing!
Best,
Gwen
 
 
 

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/8/2009 6:27 PM (GMT -7)   
Welcome to HealingWell,

This is one of the best places in the world when you are dealing with chronic illness or know someone who is suffering for chronic illness.

It is a good place to come and get info or just to vent to some people who know what you are going through.

Hope your friend is one of the few lucky one's and gets better
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/8/2009 8:00 PM (GMT -7)   

Gwen, I feel that I was fortunate to have 6 yrs. of sobriety when I was diagnosed with hep C.  I went through the gamut of emotions that one experiences with a loss (in this case loss of health.)  Thanks to AA, I was able to deal with all the stages of grief very quickly, mostly by sharing what I was feeling.  I know that had I continued to drink or if I had started back again, I would not be here today.  I have been given more than one "second chance."  I feel that God still has a purpose for me here on earth, and part of that is being able to share my experience and knowledge and offer hope to others with liver disease, particularly alcoholics.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 8/9/2009 7:33 AM (GMT -7)   
Gwen, hi and welcome to HW. You are a wonderful friend to be so supportive. Watching a loved one suffer is the hardest things that anyone can do. It is so traumatic to all of us. HW will be a great solace to you. Everyone involved in the forum has some connection to liver disease. Whether it is a family member or friend we all understand. Offering your friend your unconditional support is the best thing you can do for them. Love is the one thing we can not buy, we can not sell, we can not trade. Love is such a profound emotion that there is no explanation to describe it thoroughly. All I know is that when given it is returned 10 fold. Bless you for your love and concern for your friend. Keep posting as often as you want. We are here for you.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Gwen75
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/9/2009 12:05 PM (GMT -7)   
Thank you All for such kind and thoughtful responses.
 
"Kind words are a creative force, a power that concurs in the building up of all that is good, and energy that showers blessings upon the world."
 -Lawrence G. Lovasik
 
Best,
Gwen
 
:-)  

5Joan5
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 8/13/2009 5:53 PM (GMT -7)   
Dear Gwen,

Your situation sounds so familiar. My friend, Mary was diagnosed 2 years ago last July. At that time and for many months after I thought she was going to die within a few months. Actually, once she stopped drinking and got her meds right she's been hanging in there. However, she pretty much lives between a bed set up in the living room and the kitchen. She has not been able to drive or go anywhere on her own (she really doesn't feel like going out anyway) for over a year. Some days are better than others but her quality of life is very diminished. She finally got listed last March. It's a long shot, but it's a chance.

What I have found that she and her family need help with is cooking and just being around to keep things seeming "normal." I have come to understand that it's one thing for the terminally ill person to deal with, but for the family it is living with a person who is dying. There's a sadness that seems to lift a little just by having someone else in the household occasionally to help or visit. The truth of it is, when someone is this ill, most people are too afraid that they won't know what to say or do and so they just don't come around at all.

Be the best friend you can. It's hard, though. All I know is that if I'm ever in a situation like my friend, I hope someone like me comes along to help or just be a friend.

Take care,

Joan
Best friend is in ESLD, has HepC and cirrhosis. 


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 8/14/2009 4:21 AM (GMT -7)   
Gwen. I feel the same, wish i had a friend to talk to. My husband can't take it all. For some reason when you are diagnosed with this illness. I guess people think I am contagious and slowly slip away when they could be just lending an ear. Especiall on those special days of Encepalopathy. I I was told my illness went undiagnosed for way to many year, Till three years ago when I had a really bad case of encepalopathy.Was told to quickly get on the list because I was ESLD I always felt fine not much for drinking, no drugs ,no hepatitis lYet here I sit just waiting 3 yeARS later , When I was told I may die with 5 monthsl.well it all comes down to transplant . I am on the list but really not ill enough to require a transplant THANK GOD'

One more thing. Don't stop being a friend. Even if she says weird stuff. It's the Enceplopathy talking. Not her.

I have Cryptogenic liver disease. When Dr. s run out of words they make one up, To make us feel like they know what they are doing.

TaKe Care june
it takes me to long to edit and I'm told I don't have much of that should show them I can live to be an abnoxious old grandma who can live to be 100+++++

Gwen75
New Member


Date Joined Aug 2009
Total Posts : 17
   Posted 8/14/2009 2:00 PM (GMT -7)   
Hi Joan, Hi June.
 
Much positive Energy to each of you.
Please feel free to bend my ear if the need arises.
 
I think that both of you were really on point with your posts.
Thanks to each of you for such astute advice.
 
 
 
Rest, and Enjoy.
 
Best,
Gwen
 
 
 
 
 
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