My test results are back from the biopsy

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/15/2009 12:11 PM (GMT -7)   
The inflammation was 5 on the scale from 0-18
and the live tissue (don't know the real name) was 2 on the scale from 0-6

The next thing my doc wants to do is to admit me to the hospital for 3 days for some more check up

He said that I could probably not use Imuran because I have tried it once before and got pericarditis.
So I think we start with the pred :(

Do you know about another drug used for AIH?
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 839
   Posted 8/16/2009 9:36 AM (GMT -7)   

Pred is the first drug used.  It may be a horrible drug as per side effects but it is a life saver and that's what's important.  The docs will add an immunosuppressant to the pred as they are considered to be 'steroid-sparing' drugs.  Once stable on both, you'll start weaning off the pred with regular blood tests especially before each decrease in dose.  I have heard of some people who start on or are switched to Entocort (budesonide).  It's also a steroid but different than pred.  My understanding is it's expensive.  Depending on what type of benefits for medications you have, you can discuss that with your doc.

As per immunosuppressants...if you can't take imuran, there's CellCept, Cyclosporine and my doc had mentioned Tacrolimus once. 

I was never given any staging numbers as to my inflammation or damage...only told that I had severe damage but no cirrhosis.  I have my pathology report and it says: large areas of hepatic necrosis with parenchymal extinction and early fibrosis, portal inflammation with lymphocytes and plasma cells, periportal piecemeal necrosis, lobular hepatitis with acidophilic bodies and minimal bile duct damage with bile ductular proliferation, no significant steatosis.  But now I am off the pred and only on 100mg of imuran.  I was diagnosed in Jan '07.  You'll know when the inflammation is gone when your numbers return to normal.

Why do you need to be in the hospital for more tests?  I suppose countries outside of the States tend to keep you in hospital more to run everything at once.

Keep us updated on your treatment and how you're feeling.


Dany
 
Diagnosed with AIH January 2007,
CMV (cytomegalovirus) June 2008
meds: Azathioprine 100mg
 
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 8/16/2009 10:25 AM (GMT -7)   
My doc likes to keep me in the hospital so he can do all the test's he likes and so I can relax in my bed between test's.

We don't pay that much for drugs in Iceland. We don't have any special health insurance, everyone is just covered by the country :)
So the health system is not expensive. I pay about 10 dollars for 3 months of Entocort.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009


Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

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