WE HAVE A LIVER!!

New Topic Post Reply Printable Version
46 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 8/20/2009 2:55 PM (GMT -7)   
Way to tired to speak, but mom was transplanted last night!  WIll post more after some sleep!

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 8/21/2009 6:25 AM (GMT -7)   
Ya Whoooooo!!!!!!! yeah yeah yeah Can't wait for the update...........Soooooo Happyyyy for you guys...........Lot's of thoughts and prayers for a speedy recovery..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 8/21/2009 8:06 AM (GMT -7)   

We got the 7th call on Wednesday at 5p.m. Doctor came in and asked my mom if she would like a new liver, she said "yes please!" We got the word it was good at 12:10 in the morning of Thursday.  2:00 a.m. they had all the lines in and she was intubated.  At 7:30 they told us the liver was in and fuctioning - producing bile and mom was producing urine (she developed hepatal-renal syndrom and had started dialysis on July 15) so they are hopeful that her kidnesy will kick back in.  At 10 she was in recovery and we got to see her at 1 p.m. on Thursday.  At that point, the staff sent us home and told us to get some rest and sleep and that we could call them anytime, but they didn't want to see us for 24 hours!!  Their words were that mom needed the doctors and nursed more then us, that she would need us way more very soon.  I think we were looking pretty haggard, we are taking their advice!  Theyhave called us a couple ot times to say that she is okay.  They have started to wean her off of the ventalator, and her eyes are open, but not processing anything just yet. 

I know we have a long way to go, but i am feeling over the moon!  The surgeon told us that mom's MELD score was 35 and probably wouldn't have made it through the week, which we sort of knew already.

Chin up everyone! 

 

 


Crone2003
New Member


Date Joined Aug 2009
Total Posts : 12
   Posted 8/24/2009 7:04 PM (GMT -7)   
Congratulations! yeah
Crone2003


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 8/24/2009 8:15 PM (GMT -7)   
Congratulations!! I am so happy for you all.......prayers for a speedy recovery. When you can, please post and let us know how she is doing!!

Mer

cj7
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 8/24/2009 10:18 PM (GMT -7)   
This wonderful news for your mom and you. Have a great recovery and look forward to hearing how well your mom is doing. Congratulations again!!!!!
cj7

child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 8/25/2009 6:24 AM (GMT -7)   
A bit of a set back - can't keep mom's blood pressure up, and her white count is up, but they nurses seem very calm and are handleing it, so we have to trust them!  They do have mom back on the vent - mostly to make it easier.  Dr and nurses say blood pressure first, then the vent, then they will try to get her kidneys to kick back in.  On a VERY good note - the liver is just fuctioning perfectely.  Her numbers keep coming down.  Mom is awake and responding - we tell her that she is doing great and to just hang in there and let her body do what it needs. 
 
We keep praying and stay hopeful.  We are actually getting some rest.  After just having to be all over the nurses to get mom to the transplant, these ICU nurses are just so plesant attentive and competent.  I want to take them home with me!

BarbL64
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 8/25/2009 11:08 AM (GMT -7)   
I'm so happy to hear that they got a liver for her.  Hopefully everything will settle down and her recovery will smooth out.  I'll keep you in my prayers.
Barb

child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 8/25/2009 11:59 AM (GMT -7)   

Thank you thank you thank you!!

I can feel the prayers!

Dr. says the new liver is just kicking butt!!!


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 8/25/2009 1:44 PM (GMT -7)   
child4, I am so happy for you all. What a relief for you to know that the transplant is behind her now. The other things are setbacks but certainly fixable from what you have said. Try to rest cause you all will need your energy when she come home. I am thrilled for her and the family. GOD Bless you all.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/1/2009 12:00 PM (GMT -7)   
Mom still in ICU - liver is fuctioning well.  Still on dialysis - but trying to get the kidneys to kick in.  Incision is healing really well, mom looks good.  Here's the problem - her mental state is aweful!! With the enseph - we had periods of lucidiy - we have had nothing ofr a couple of days.  White count up, so they are changinf leads.  She has only been up once since the transplant.  Can anyone offer insight?  Only thing the dr say is that it's the medication and that she was really sick.  What am I missing??? 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/1/2009 12:25 PM (GMT -7)   

Child4, this was wonderful news for me to come home to!  As you may know, I've been away since Aug. 12th, having a hip revision and rehab.

Your mom's body is having to adjust to the new liver and new way of functioning.  Everyone seems to go through some trials after transplant.  It's just something you have to be patient with.  The medical staff know what they are doing, so you have to trust them.  The encephalopathy could very well be the medication she is receiving, or it could be that her body is not yet clear of the toxins.  She was very ill, indeed.  You all are going to need a lot of patience in the coming weeks and months.  Anyone whose loved one has gone through transplant can tell you that recovery is a rocky period.  Just hang in there and keep the faith that got you this far!

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/1/2009 12:26 PM (GMT -7)   
thanks Connie - maybe I just needed to hear it again!! 

child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/8/2009 7:46 AM (GMT -7)   
Looking to you all for answers AGAIN!  So, mom's new liver is working perfectly - her numbers are normal and she looks great.  here's the issue, the lights are on, no one is home.  The dr are saying it is the anti-rejection medication, which they have switched twice.  Any insight?

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/8/2009 12:28 PM (GMT -7)   

I seem to recall other transplant recipients experiencing this.  Just give it some time.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/8/2009 12:46 PM (GMT -7)   
will you keep reminding me....and sending hugs!  mom was so great right after the surgery, and we were told that there might be some sliding backwards, but it is so hard....and trying to figure out the questions to ask - don't even get me started!!!
sad

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 9/8/2009 6:43 PM (GMT -7)   
Child4....you hang in there!! YOu guys have come a long long way....and don't forget that!!! As I was reading this, something just kind of struck me.....I believe after transplant they give very large doses of steroid medication, is that correct??? (Seems like I have heard this before). The confusion, etc could actually be a phsychosis of some type from the steroid medications. I would just mention it to the docs and see if that's a possibility. But, you have to remember, she also had a lot of junk in her system, and if her kidney's are still not kicking in correctly that can also cause ammonia to build up if I am not mistaken.....

Hang in there...we are all praying for your family!!!

Mer

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 9/9/2009 4:16 AM (GMT -7)   
 
Child4,
 
I bumped WE HAVE A LIVER regarding my husband's liver transplant.  What your mother is experiencing is normal.  The surgeons give transplant recipients a mega dose of steriods in the operating room.  You mother's body must cope with this.  Also, if she has been hospitalized for a long period it's likely she is suffering from "hospital psychosis".  My husband experienced both.  Please review my posts on page 2 and 3 of WE HAVE A LIVER.  For a definition of hospital psychosis, look it up at http://www.wisegeek.com/what-is-hospital-psychosis.htm 
 
Gotta run.  Hang in there.  Your Mom is blessed with another chance. 
 
Penny

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/11/2009 9:26 PM (GMT -7)   
Child 4  My husband got his transplant on 8/3.  He seemed really good and calm at first then wam they had to put him in restraints.  It was the prednsone.  He is normally a very calm person so I did get a little scared.  But the nurses and Dr. were great.  I hope she is doing better now.  I must tell you we had in our heads that once he got the transplant every would be great.  NO So he still has all the symptoms he had before the transplant and more.  We are learning that it takes time for his body to adjust.  We are still trying to get meds adjusted.  He is still the prednisone man.  Eats non stop!  He is finally sleeping some.  Averages about 4 hrs a night.  He still has horrible itching and has to eat in the middle of the night.  Its crazy but as I have said none of this life threatening so we just have to be patient  He still has fluid problems along with high blood pressure and blisters leaking on his legs.  I could go on and on but you get the idea.  Just hang in there and try and get as much sleep as you can while your mother is in the hospital.  Has the Dr. said anything to you that some of this could be caused from being put under for so long?  Just an idea I had.  Keep the faith things will get better.
 
JoAnn

child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/14/2009 8:05 AM (GMT -7)   
Mom still in ICU - basically unresponsive since Saturday (9/5). They think the rejection medication is causing seizures. Today they are taking her off of the propafol - which they were using to try and calm the sizures as well as other medications - she was reintubated, and still no reaction from her. Liver is fuctioning beautifully, but she is basically in a coma.

AmeeP
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 9/14/2009 10:06 AM (GMT -7)   
Sending hugs and prayers. God show this family how great you are, strenghten them, lift them, and encourage them. I pray for healing on the mother.

Amen

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/14/2009 11:42 AM (GMT -7)   

Child4, keep the faith.  Propofol?  That's the anesthetic that was given to Michael Jackson.  I could see how she would be unresponsive on that...surprised that they gave it to her, though a very small dose, I'm sure.

My prayers are with you all.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


child4
Regular Member


Date Joined Jun 2009
Total Posts : 107
   Posted 9/14/2009 12:33 PM (GMT -7)   

Thank you Amee P - one of these days I will write the story about the Bishop of Pittsburgh coming to bless my mom - we refer to her liver as the Bishopr's liver.  I have lots of faith, sometimes i need to be reminded!! 

 

Hep 93 - yep, propafol!  Looks like milk.  She is on the continuous diaysis to help get the toxins out and remove the medications that might be causing problems, including the propafol.  The nurses think maybe she needs our voices to come around today, we are working on that.  I want to slip her lactulose!  That always worked before!  The drs laugh at me when I say that because my mom hated that and it was what she said to the doctors just before the transplant surgery - that she would not have to take that anymore!!  And I know that this is differnt, but I am begining to get despirate!!

 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/14/2009 4:07 PM (GMT -7)   

Child4, remember what Shelly and others have said:  She can hear you even if she appears to be in a comatose state.  So yes, the voices of family would be heard and might help her "come back."

With the dialysis and her liver working well, it's doubtful that ammonia has built up in her brain...so Lactulose would be useless in this instance.  I'm sure you know that and were just kidding...or speaking out of desperation, as you said.  I believe she will come around eventually.  Just keep being there for her as much as possible.  Read the paper to her, talk to her.  It will help.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


AmeeP
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 9/17/2009 11:07 AM (GMT -7)   
Child4,

I hope things have gotten better for you and your family. I was wondering if they doctors ahve stopped the propafol? I noticed last night that they are also giving this to my mother in law. I think it has something to do with the fact that they were unable to colse her up completely, and they want to keep her in a deep sleep/paralysed state.

What were the side effects that you all experienced?

Thank you,
Amee

Ephesians 5:15 encourages us to 'be very careful how you live, making the most of your time..' Each and every one of us is going through tough times right now, but God is getting ready to bless you in a way that only He can. Keep the faith

Father, I ask You to bless my friends, relatives and those that I care deeply for, who are reading this right now. Show them a new revelation of Your love and power.
Holy Spirit, I ask You to minister to their spirit at this very moment. Where there is pain, give them Your peace and mercy. Where there is self-doubt, release a renewed confidence through Your grace. Where there is need, I ask you to fulfill their needs. Bless their homes, families, finances, their goings and their comings . Amen
New Topic Post Reply Printable Version
46 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, December 07, 2016 1:33 PM (GMT -7)
There are a total of 2,734,219 posts in 301,195 threads.
View Active Threads


Who's Online
This forum has 151319 registered members. Please welcome our newest member, Geezer Jock.
492 Guest(s), 13 Registered Member(s) are currently online.  Details
George_, Celeste15, Pirouette, Scaredy Cat, AngelsmamaDorseysdaughter, rocckyd, BillyBob@388, White Bird, pmm73, catti, The king, julymorning, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer