We got the 7th call on Wednesday at 5p.m. Doctor came in and asked my mom if she would like a new liver, she said "yes please!" We got the word it was good at 12:10 in the morning of Thursday. 2:00 a.m. they had all the lines in and she was intubated. At 7:30 they told us the liver was in and fuctioning - producing bile and mom was producing urine (she developed hepatal-renal syndrom and had started dialysis on July 15) so they are hopeful that her kidnesy will kick back in. At 10 she was in recovery and we got to see her at 1 p.m. on Thursday. At that point, the staff sent us home and told us to get some rest and sleep and that we could call them anytime, but they didn't want to see us for 24 hours!! Their words were that mom needed the doctors and nursed more then us, that she would need us way more very soon. I think we were looking pretty haggard, we are taking their advice! Theyhave called us a couple ot times to say that she is okay. They have started to wean her off of the ventalator, and her eyes are open, but not processing anything just yet.
I know we have a long way to go, but i am feeling over the moon! The surgeon told us that mom's MELD score was 35 and probably wouldn't have made it through the week, which we sort of knew already.
Chin up everyone!
Thank you thank you thank you!!
I can feel the prayers!
Dr. says the new liver is just kicking butt!!!
“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Child4, this was wonderful news for me to come home to! As you may know, I've been away since Aug. 12th, having a hip revision and rehab.
Your mom's body is having to adjust to the new liver and new way of functioning. Everyone seems to go through some trials after transplant. It's just something you have to be patient with. The medical staff know what they are doing, so you have to trust them. The encephalopathy could very well be the medication she is receiving, or it could be that her body is not yet clear of the toxins. She was very ill, indeed. You all are going to need a lot of patience in the coming weeks and months. Anyone whose loved one has gone through transplant can tell you that recovery is a rocky period. Just hang in there and keep the faith that got you this far!
I seem to recall other transplant recipients experiencing this. Just give it some time.
Child4, keep the faith. Propofol? That's the anesthetic that was given to Michael Jackson. I could see how she would be unresponsive on that...surprised that they gave it to her, though a very small dose, I'm sure.
My prayers are with you all.
Thank you Amee P - one of these days I will write the story about the Bishop of Pittsburgh coming to bless my mom - we refer to her liver as the Bishopr's liver. I have lots of faith, sometimes i need to be reminded!!
Hep 93 - yep, propafol! Looks like milk. She is on the continuous diaysis to help get the toxins out and remove the medications that might be causing problems, including the propafol. The nurses think maybe she needs our voices to come around today, we are working on that. I want to slip her lactulose! That always worked before! The drs laugh at me when I say that because my mom hated that and it was what she said to the doctors just before the transplant surgery - that she would not have to take that anymore!! And I know that this is differnt, but I am begining to get despirate!!
Child4, remember what Shelly and others have said: She can hear you even if she appears to be in a comatose state. So yes, the voices of family would be heard and might help her "come back."
With the dialysis and her liver working well, it's doubtful that ammonia has built up in her brain...so Lactulose would be useless in this instance. I'm sure you know that and were just kidding...or speaking out of desperation, as you said. I believe she will come around eventually. Just keep being there for her as much as possible. Read the paper to her, talk to her. It will help.