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exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/1/2009 6:47 PM (GMT -7)   
Hello All
I'm sorry its been so long but I have been crazy busy.  As you all know Jerry got his new liver on 8/3.  Was released from the hospital on 8/13 but had to stay in a hotel (because we live 3 hrs away) until 8/21.  It felt so good to sleep in our own bed after 3 weeks.  We just got one night in our bed.  The next day Jerry started running a fever and he had been swelling some but that day his legs just blew up like a balloon.  Sat 8/22 at 10:00 in the evening Vanderbilt surgeon decided he needed to be seen right away.  I had to take him to Univ of Tn Medical Center that is only about 10 miles from us.  We were in the ER all night.  Jerry needed two units of blood.  They also gave him lasix IV to try and get the swelling down in his legs.  The ER Dr. stayed in touch with Vanderbilt.  They made the decision that Jerry needed to be transported by Ambulance to Vanderbilt.  By the time all this happened it was almost morning.  At 3:00 AM I drove home to get the suitcase that was still packed from the 8/3 trip to 8/21.  I also had to pack an ice chest for Jerry for food so he had something to eat in the ambulance!!   The Dr. all got a kick of out that.  I think I told you all once the prednisone kicked in he started eating everything in sight.  I have to tell you he even talked the ambulance driver in to stopping so he could go potty (Lasix) BUT what he really wanted was food.  Can you see him in the convenient mart walking around in his hospital gown trying to find something to eat.  He forgot that I had his walet.  I'm surprised he didn't borrow it from the driver.  My daughter was sure he would talk them in to going through a drive up window somewhere. ha ha.  Fast forward to Tuesday he was released from Vandy but told we have to go back to the hotel and wait a couple of days to get blood work.  Thurs we went back to the hospital early AM blood work was good they were happy so we were given the OK to return home with prescpt. for blood work twice a week.  We were so excited we went back to the hotel I packed while Jerry ate!  I went to get the car while he made reservation for our next visit.  Next thing I know someone is flagging me down in the street.  Jerry had fallen in the lobby of the hotel and they had called an ambulance.  Good God.  He wants to burn the Crocs I got him two years ago.  He couldn't wear his usual shoes because of swelling.  Anyway his head was cut pretty bad.  So the ambulance took him BACK to Vanderbilt hospital.  We were there six hours.  I called the liver people and they met us in the ER.  To make this LONG LONG story short Jerry fractured his shoulder and he had 5 stiches in his head.  They sent us home with an appt with a Orthopedic Dr. tomorrow.  My big concern is as the week pasted his arm turned DARK purple almost black.  It has now traveled to his finger tips.  Vandy has told me not to worry but if they could see his arm they would worry also.  It looks like his arm is going to fall off.  He's in horrible pain.  He says its worse then the transplant surgery.  Thank god we go tomorrow.  Also they have upped his dose of Magnesium.  This is the third time.  I know I have read that in some posts here about magnesium.  I guess what I'm looking for if anyone has seen this happen from a break and also can anyone tell me why his magnesium is so low.  Thank for hearing me out.  I'm very sleeped deprived because Jerry is not sleeping much at all due to the prednisone and the horrible pain and also he is still itching.    Sorry to go on so long.  Thanks for listening.
 
JoAnn

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/1/2009 7:50 PM (GMT -7)   

OMG, JoAnn!  I cannot believe the ordeal you guys have been through in such a short time!  Good gracious!  As for the bruising/discoloring:  Is he on Coumadin or another blood thinner?  This is the first thing that came to mind as I just went off of Lovenox injections several days ago after being on them since my hip surgery Aug. 12th.  The tiniest bump against something would turn my leg purple in a large area.  Blood draws gave me huge bruises on my arms.  I don't know if low magnesium would have that effect or what would cause the low magnesium.  Maybe Shelly knows.

Tell Jerry to be careful or you will take away his food supply!  smilewinkgrin

I hope you can get some sleep soon!  I'm sure you are beyond exhausted.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/1/2009 8:16 PM (GMT -7)   
Connie
No, Jerry is not on blood thinners.  That is exactly my thinking.  I'm just wondering if his blood is still think from the bad liver.  Maybe it hasn't had time to thicken up.  I'm not a nurse but I think I could get a job at Vanderbilt on the liver floor.  In fact I think they offered me one.  Maybe Shelly will know.  I will e=mail the pictures of his arm you won't believe it.
 
JoAnn

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/2/2009 10:21 AM (GMT -7)   

JoAnn, I didn't recognize your e-mail addy (been away too long!) and am leery of opening attachments from those I don't know...so I deleted them all.  I had opened my mail prior to coming here.  I'm sorry!  But I will take your word for how bad it is!!  smilewinkgrin

Hugs,

Connie

P.S.  I was able to retrieve the e-mails and open the attachments.  Jerry's arm looks more red than purple...like the blood is pooling.   I had this on both my lower legs at one time and was told that the blood was pooling down there and not making its way back up.  This was a matter of not being mobile after surgery and having poor circulation.  This time around, I don't even have any swelling.  I had some immediately after surgery, but with PT it went away.  I assume the doctors know about this swelling and bruising of Jerry's arm.  I see the elbow is quite swollen.

C.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 9/2/2009 11:31:17 AM (GMT-6)


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 9/2/2009 2:42 PM (GMT -7)   
JoAnn.....you poor thing!!! OMG!!!! I don't even know what to say, except that I hope all goes well w/ the ortho! I, too was wondering if maybe his platelets were still low or something and maybe that's why he's bruising so bad. But, depending on where the break is, it could have cut off some circulation or something?? possibly?? I have to admit I did laugh at the part about stopping the ambulance for food....that sounds like something my husband would do!!!

You guys hang in there, and I do hope you get some sleep SOON!!!!

Prayers are with you!

Mer

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/6/2009 9:10 PM (GMT -7)   

Hi Mer

To tell the truth I have had 12 hrs of sleep that last two night  YEA  Ofcourse they were not uninterupted.  But I'll still take them.  The appt with the orthopedic surgeon went really good.  Luckly he had worked with liver transplants at one time so he was knowledgable in that.  The nurses in his office could not beleive Jerry's arm.  They had NEVER seen one like that.  The problem is his blood clotting facter.  Still not where it should be.  He's a mess.  The pain from the fracture is much worse then the liver transplant.  The Dr. said it will take a while to heal but he doesn't think Jerry will need surgery  Yea.  Of course I'm still married to the Prednisone man.  If I don't keep enough groceries in the house he freaks.  Today I had to go to SAMS CLUB and buy in bulk!!!  His swelling is much better mainly because he is taking high does of Bumex. That concerns me some because of his kidney function.   Can anyone tell me what I should be looking for in his blood work.  I don't know which numbers are liver function.  He definitely has not lost his sense of humor.  He told me this morning he thinks he got a womans liver.  I asked him why.  He said because his is really *****y!!!  I knew I shouldn't have asked him WHY!!  I'm enjoying every minute.  We can now have good conversations.  I love it.  I think I have him back.  It feels so good even if he is a human garbage can!!!!!!  I will keep you all posted.

 

JoAnn smilewinkgrin


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/7/2009 12:52 PM (GMT -7)   

Tell him it can't be a woman's liver 'cause women don't eat like that!  LOL!  Despite the assorted problems, I know it must feel good to have your man back.

As far as kidney function, poor function will show up as elevated creatinine and low BUN (blood urea-nitrogen.)  There will also be scant urine and perhaps it will be dark or concentrated.  If he is not on fluid restriction, make sure he is drinking enough fluids.  He can also get fluids through fruit.  If he is on diuretics, make sure his potassium doesn't get too low.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 9/10/2009 3:20 AM (GMT -7)   
JoAnn,

So sorry to hear that Jerry fell! He'll be okay though. I've notice that Harvey is not always steady on his feet. He has fallen a couple of times since the transplant. I believe the meds mess with his equalibrium. Jerry is just going to have to understand this and try to be cautious. The bruising is normal. It's been almost 8 months and Harvey still bruises easily and it takes a very long time for the bruises to fade.

Harvey is on 1200mg of magnesium a day as well as 1000mg of calcium. This is good for the muscle tissues and healing. Harvey is taking a high dose of aspirin 500mg per day (contributes to the bruising) because studies have proven that it helps stave off the PSC disease from reocurring.

Be patient. It will take several months before Jerry is back to his old self. The worst is behind you.

Love ya!

Penny

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/11/2009 9:41 PM (GMT -7)   

Penney  Well it hadn't even been an hour when I read your last post and Jerry hit his arm on the banister.  The skin just peeled back.  IT looks horrible. So besides wrapping his legs because the blisters are back and leaking fluid I have to wrap his arm also.  The other arm is still in a sling from the fractured shoulder.  We went back to Vanderbilt yesterday.  His BUN is 55 which really scares me.  Creatinine is 1.7 which isn't good.  They have changed from Bumex to a Lasix and I've upped his water.  Poor guy.  He looks like a mummy!  But, by golly his liver is working good.  They have lowered his prednisone so he is only eating about 20 hrs a day instead of 24.  He's really getting skinny!  After we saw the surgeon we saw the Orthopedic Dr.  Its seems that he has more then one fracture!!  More showed up on the MRI.  His arm is healing good.  Its not as black and blue.  And he is starting to move it a little more.  When he moves it in his sleep he yells. Its horrible.  But that liver is working good so we are thankful.  I hope you and Harvey get to go on a cruise.  That sounds wonderful.  If you get close to Knoxville while on your camping trip get in touch and we will compare liver stories.  Take Care

JoAnn

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