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SusanMc
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/5/2009 7:54 PM (GMT -7)   
Hi - my name is Susan and I was diagnosed with AIH almost 4 years ago.  I'm now on 2.5 pred and 100mg Imuran - could not take Urso forte b/c it made my legs hurt and made me so tired.  I basically struggle with fatigue.  My main problem right now is that my Alk Phos is going higher and higher each month - had an MRI/MRICP a couple of weeks ago - just shows what we already know - cirhosis. 
 
Anybody struggle with high Alk Phos?
 
Good to know that I'm not the only person with this disease!
 
Thanks.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/5/2009 8:03 PM (GMT -7)   

Welcome to the forum, Susan!  I have hep C and cirrhosis and am a liver cancer survivor.  We have a number of folks here with AIH, so I'm glad you joined!  You will have company and perhaps find others with the alk phos elevation.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


SusanMc
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/5/2009 8:08 PM (GMT -7)   
Wow Connie - what a story!

It's nice to talk to people who at least understand some of the stuff you go thru - I definitely don't want to sound like a cry baby but one day I feel great and the next I'm not the same. Although there are people who get up to go to work and never make it thru the day....at least I've made it another day and for that I am thankful. I am a mother of six - 5 are still at home! So, life is busy!

Smiles - Susan

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/6/2009 11:45 AM (GMT -7)   

5 kids at home?  You are indeed a busy lady!!  I hope you can get your AIH under control and be around for your children for many years to come.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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