It's been a while... and what a roller coaster ride

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AmeeP
Regular Member


Date Joined Mar 2009
Total Posts : 71
   Posted 9/14/2009 10:00 AM (GMT -7)   
I just wanted to check in with everyone. I know I have not posted here in some time. My mother in law has been listed on the Liver transplat list. So we are happy and very thankful for that. But as many of you already know, that is only half the battle. Today I received a call from the nurse at UMDNJ. My mother in laws MELD is now 23, and now they have placed her on hold on the list as she has a skin disease that they are concerned about. The dermatologist isn't too concerned, and has given her some cream to use. It appears to be working. Now we have another issue with her nutirtion. She's down to 115 pounds and she cannot eat, not due to excessive fluid, but because she just doesn't have the desire to eat. She's sleeping almost all day now, and it's a challenge getting her to take her medications as she should. She breaks my heart seeing her like this. She tires to stay awake, a few hours in the evening when my husband (her son) and my brother in law (her other son) are home. I think she doesn't want them to know what is going on in the day. But I feel obligated to keep them informed too. They have been very good about not making her feel bad and we are all trying to support her as best we know how.
 
I would appreciate it if you all could add her to your prayers. We need all the intervention we can get.
 
God bless you all,,, and I'm praying for all of us,
Amee
 
 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/14/2009 11:35 AM (GMT -7)   

Amee, thanks for checking in.  I'm so glad your MIL made it to the list.  Don't let her sleeping frustrate you.  She wants to stay awake, but just can't.

It's a roller coaster ride of ups and downs, for sure.  I hope MIL will be able to get a new liver.   My prayers are with all of you.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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