auto immune hepatitis

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bopeep
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/25/2009 7:40 AM (GMT -7)   
hi peeps iam a newmember who finally plucked up the courage to come onto here.i have aih and have had it since 2006,even tho i did not get it regognised til 2007.i fell very down just now even tho my blood results are the best ive had.i just feel tired and week most of the time.im on 3000mg of cellcept a day,5mg of prednisolone and 5mg of advagraf.

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 458
   Posted 9/25/2009 7:49 AM (GMT -7)   
 
Welcome Bopeep there are quite a few of us that have AIH and I find it is very helpful to find out how others are dealing with AIH.  I am very lucky in one way that I never have had any symptoms and was diagosed in 06 as a result of a blood test for something else.  Even when my liver enzymes were in the 900"s I displayed no symptoms and only knew I had a problem because they took blood test and a liver biopsy.  I have been on the Prednisone wagon for 3years up and down and just started some new medicine and am very hopeful I can get into remission.
 
Jerry1

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/25/2009 12:31 PM (GMT -7)   
Hi, Bopeep, and welcome to the forum!  We have quite a nice little group of people on here now with AIH.  I know you will get a lot of support and make some friends here.  If your depression gets any worse or lasts for a period of time, perhaps you should ask your doctor about antidepressants.  Anyone with a chronic disease tends to get "down" from time to time, I know from personal experience.
 
Big hugs to you,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bopeep
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/26/2009 11:33 PM (GMT -7)   
thank you hep 93 and jerry 1.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/27/2009 12:35 AM (GMT -7)   

Bopeep, are you feeling less depressed now, or the same?

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bopeep
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/27/2009 6:45 AM (GMT -7)   
not to bad now thanks.just looked over my last blood results and there the best they have been.so def a lot better now.suppose its just going to be like this.up and down all the time

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/27/2009 1:28 PM (GMT -7)   

I'm glad to hear you are feeling better.  Be sure to do things for yourself that make you feel good:  A bubble bath, a walk, a movie, whatever gives you pleasure and isn't harmful.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/27/2009 3:48 PM (GMT -7)   
Hi Bo Peep,

I'm new here too and also have AIH. I've probably had it since 2004 but wasn't diagnosed until 2008. I have Stage II liver damage and am on Imuran (100 mg) and prednisone (started at 40 mg, tapered down to 7 mg).

I have a lot of other autoimmune diseases and related disorders too. I know just how you feel....tired and weak. Focus on taking care of you right now; as others have said, do something fun, something that makes you feel pampered or whatever. That will help a lot.

I'm glad that you said you're feeling a bit better.
Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Reynaud's syndrome. Possible lupus and/or Sjogren's Syndrome - diagnoses pending.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/27/2009 9:42 PM (GMT -7)   

Hi, NasaLady/JoAnn, and welcome to the forum!  I would normally suggest that you start a new topic to introduce yourself and your situation, but since you have AIH and are in the AIH thread with others who have the same problem, you will probably be okay as you are.  We just don't want anyone new who posts to be overlooked.

I see you have Raynaud's.  I do, also, but not AIH.  I have chronic, active hep C and cirrhosis and am a liver cancer survivor.

Again, welcome!

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/28/2009 8:28 AM (GMT -7)   
Thanks hep93! Wow, Hep C, cirrhosis and surviving liver cancer....you have been through a lot! I look forward to learning from everyone here.

I did do a formal introductory post over in the fibromyalgia forum, but not here. I've been active in a lot of different forums here already....I love this site because it has forums for so many of my various conditions! :)

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Reynaud's syndrome. Possible lupus and/or Sjogren's Syndrome - diagnoses pending.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/28/2009 1:28 PM (GMT -7)   
"you have been through a lot!"
 
You don't know the half of it!  LOL!  However, it seems that you are dealing with quite a lot yourself.  Hang in there!
 
Hugs,
Connie 
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bopeep
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/29/2009 6:35 AM (GMT -7)   

thanks joann.hope things look up for you and hopefully get better soon

 


bopeep
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/29/2009 6:36 AM (GMT -7)   

you have been through a lot hep93.hope you are doing ok

 


cj7
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 10/23/2009 6:09 PM (GMT -7)   
Hello Connie,
 I am so sorry I have been away so long. I haven't been to well. I think I slept Sept and most of Oct away. I was full of ascites about 12 extra pds.  It is mostly gone but watching for any return. I am still very tired and always ill to my stomach before and during eating. Usually can't eat to much. My liver Dr. thinks it may be the next stage of my disease which is into Cirhosis.  Yes I am depressed and that's from many different things.  Hopefully when I  just feel better it will help me. My friends are trying to keep my spirits up. I am waiting for something substancial before I tell our girls.  I am seeing my MD now and scheduled for my liver Dr. in December, unless he wants to see me sooner. He is calling me on Tuesday to discuss what he wants to do from here. We do alot of phone talk where it is 3 hrs to see him.  I will try keep in touch and hope to talk to some of  the friends  that I have made here. Everyone is so helpful and I am concerned how everyone is doing. 
 
Take care all! cj7

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/23/2009 7:57 PM (GMT -7)   

cj7, I slept most of Aug. away after having a revision of my rt. hip.  Bad enough to go through major surgery, but with underlying hep C and cirrhosis...all I wanted to do was sleep.  So I hear ya!  Thanks for checking in with us and keeping us updated.  I hope that your hepatologist can make some suggestions to point you towards feeling better. 

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


cj7
Regular Member


Date Joined Jul 2009
Total Posts : 26
   Posted 10/25/2009 7:20 AM (GMT -7)   
Thanks Connie, I am so lucky to have people to talk to. I am sure some of my sleeping problem is caused from depression. My husband and I are not getting along. He doesn't understand medical stuff and all that it entails. But he also won't listen. He always thinks if you don't discuss it it will go away. Why are men like that?
Well anyway, I hope you are doing better and having a good recovery. I know it is not easy but keep up your spirits. I guess I should listen to my own advice. I seem to be able to talk to others and help sometimes. But can't apply that to myself.
Take care of yourself , Cindy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/25/2009 2:53 PM (GMT -7)   

Cindy, I don't think people really understand unless they're going through the same thing.  That is why this forum is such a terrific place--we understand each other.  I am fortunate to have a long-term b.f. who is willing to listen and has his own medical problems, so I think that makes him a little more understanding than most.  But it's the people on this forum who I know really "get it."

As for depression, I've always found that doing something--anything nondestructive--helps to get out of it or minimize it, especially if you are doing something for somebody else.

Big hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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