Hi, Mol (if I may call you that for short.) Welcome to the forum! I also have hep C, genotype 1 (don't know if a or b.) I do have cirrhosis. I'm also a liver cancer survivor. I'm 66 1/2 now and was diagnosed with hep C in '93...at age 50. At that time, they didn't have the combo, just interferon injections 3 x a week. The first round, I lasted for about 7 wks. However, my white count plummeted and my doctor took me off treatment. I tried again about 6 mos. later and the same thing happened. So that's all the treatment I've had. I did try milk thistle prior to interferon, but after about 2 mos. it didn't seem to be having any effect except giving me diarrhea, so I stopped taking it. The liver cancer was a result of basically untreated hep C. I did not have cirrhosis when I was first diagnosed with C, but was found to have it upon biopsy of my left lobe at the time my rt. lobe was removed in May '07.
Are you still being followed for the hep C? If so, you should ask your doctor about the supplements you are taking. Some can actually be very harmful to the liver, especially to a diseased liver, and none has been recognized as eliminating hep C. Also, since they are not under the FDA, the dosages may be inaccurate or they may be impure. I have a friend who ended up on disability from taking an OTC sleep supplement. The batch was contaminated and some people even died from it. It affected him mentally and physically and he could no longer work. He did get a nice settlement from a lawsuit, but that does not make up for the changes he has had to go through and the problems he had as a result of that supplement.
Nobody can answer your question as to how much time you have left. Liver disease is such an individualized thing. Every individual's disease progresses at a different rate and not everyone has the same problems develop. Just because I progressed to liver cancer doesn't mean that you will. It's a possibility, but not definite. And just because you should get cancer or have liver failure doesn't mean you will die. Have you ever been referred to a transplant center? If not, you have compensated liver disease, which means your liver is still coping. You could die of something else before you die of liver disease.
My only symptom is overwhelming fatigue. It is worse right now because I'm recuperating from major surgery (hip revision.)
I know you will get a lot of support and information here. You might want to check out Hepatitis Resources at the top of the Hepatitis page. There's a lot of good info in there about liver failure.
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