hep c progression

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Molallagram
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/29/2009 10:50 AM (GMT -7)   
Hi I'm new.  I have Hep C Genome 1a.  In 2002 I had 44 wks tx with interferon/ribavarin which did not work.  In 2004 I began seeing a person who is DHM,MSOM &LAc.  I have been taking herbals and getting acupuncture.  My viral count went down for quite a while but my lastest blood test shows it is on the rise once again.  I did not have cirrohsis (spelling?) I am 69 yrs and want to know if anyone knows how long it takes for this disease to progress to liver failure.  The tx I am taking runs me around $200 month not covered by medicare.  I do watch what I eat and am not taking any other med and am in good health other than a little arthritis which doesn't slow me down. 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/29/2009 11:41 AM (GMT -7)   

Hi, Mol (if I may call you that for short.)  Welcome to the forum!  I also have hep C, genotype 1 (don't know if a or b.)   I do have cirrhosis.  I'm also a liver cancer survivor.  I'm 66 1/2 now and was diagnosed with hep C in '93...at age 50.  At that time, they didn't have the combo, just interferon injections 3 x a week.  The first round, I lasted for about 7 wks.  However, my white count plummeted and my doctor took me off treatment.  I tried again about 6 mos. later and the same thing happened.  So that's all the treatment I've had.  I did try milk thistle prior to interferon, but after about 2 mos. it didn't seem to be having any effect except giving me diarrhea, so I stopped taking it.  The liver cancer was a result of basically untreated hep C.  I did not have cirrhosis when I was first diagnosed with C, but was found to have it upon biopsy of my left lobe at the time my rt. lobe was removed in May '07.

Are you still being followed for the hep C?  If so, you should ask your doctor about the supplements you are taking.  Some can actually be very harmful to the liver, especially to a diseased liver, and none has been recognized as eliminating hep C.  Also, since they are not under the FDA, the dosages may be inaccurate or they may be impure.  I have a friend who ended up on disability from taking an OTC sleep supplement.  The batch was contaminated and some people even died from it.  It affected him mentally and physically and he could no longer work.  He did get a nice settlement from a lawsuit, but that does not make up for the changes he has had to go through and the problems he had as a result of that supplement.

Nobody can answer your question as to how much time you have left.  Liver disease is such an individualized thing.  Every individual's disease progresses at a different rate and not everyone has the same problems develop.  Just because I progressed to liver cancer doesn't mean that you will.  It's a possibility, but not definite.  And just because you should get cancer or have liver failure doesn't mean you will die.  Have you ever been referred to a transplant center?  If not, you have compensated liver disease, which means your liver is still coping.  You could die of something else before you die of liver disease.

My only symptom is overwhelming fatigue.  It is worse right now because I'm recuperating from major surgery (hip revision.) 

I know you will get a lot of support and information here.  You might want to check out Hepatitis Resources at the top of the Hepatitis page.  There's a lot of good info in there about liver failure.

Again, welcome!

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Molallagram
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 10/31/2010 4:16 PM (GMT -7)   
Connie, when I was deleting old items from my favorites list, I found this forum and realized it was over a year ago I joined (9/29/09) and never answered your post.  Lots has happened since then.  This summer routine bloodwork showed elevated levels so I went up to OHSU for checkup.  Doc there had me stop all supplements.  You were right, levels dropped in two weeks so some of it must have been bad for me. So much for Oriental medicine.  I had ct scan where they found a small lesion and doc said I had progressed to stage 4 cirrhosis but liver is still working. (compensated)  He said I could live 20 yrs yet. Had MRI and go back the 24th for results. Am hoping and praying it's not "C." All my bloodwork is good except for the hep c , iron level up a little and low white count.  White count has been low since I had tx back in 2002.  Now I take only a multi vitamin (no iron) and still watch what I eat.
Depression has returned and wonder if there are antidepressants that are ok for hep c? I took prozac during and after tx but it  wasn't really working so I stopped.  OHSU doc said I needed to see my own doc for those.  My pc is great but doesn't know about hep c stuff.  Good info on this forum.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/31/2010 6:05 PM (GMT -7)   

Hey!  Nice to see you back here!  Antidepressants are okay for someone with hep C.  Do talk to your doctor about it.

Do you know about the new treatment on the horizon that adds another drug to the interferon/ribavirin mix?  It's expected to be available sometime in 2011 and is 75% effective against genotype 1a and 1 b.

Continue to treat yourself well and keep us updated on your progress and results of the MRI.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland
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