Experience with coma?

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unsettled
New Member


Date Joined Oct 2009
Total Posts : 2
   Posted 10/5/2009 7:11 PM (GMT -7)   
Hello,

My brother has cirrhosis of the liver and is in his end-stage. He has rapidly digressed! My concern is the coma stage as I’ve read that some patients in coma show agitation, scream, etc. Can anyone provide details of their experience of a loved one in coma? How long did it last? What symptoms, etc? Thanks so much. I’ve certainly appreciated the posts I’ve read to-date. What a terrible disease – so heartbreaking.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/5/2009 8:58 PM (GMT -7)   

Hello, Unsettled, and welcome to the forum!  I think you will find a lot of useful information here, as well as tons of support.  I'm very sorry that your brother has ESLD.  Has a transplant been mentioned at all?

From what I've read posted here by caregivers, the comatose state is usually very peaceful.  They are simply unresponsive.  What are some of the symptoms that your brother currently has?

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


unsettled
New Member


Date Joined Oct 2009
Total Posts : 2
   Posted 10/6/2009 8:15 AM (GMT -7)   
A very quick decline. In July living alone and able to drive. August TIPS surgery and retaining water. Sept. into a nursing home, barely able to walk. Today - unable to move by himself, not eating much, hallucinating, extremely weak, mainly sleeping, not recognizing his daughter. No transplant, too far gone. He's late sixties, and continued to sneak an occasional beer when retaining fluid. I'm just amazed at how quick the decline as been.

Would sure love to hear from those who experienced the end-stage. We are at a loss.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/6/2009 11:34 AM (GMT -7)   

Unsettled, the mental problems are from a buildup of ammonia in his brain.  Is he being given Lactulose?  Perhaps it needs to be increased.  He certainly didn't do himself any good by continuing to drink, even occasionally.  That is the worst possible thing that a person with liver disease can do.

Check out the Hepatitis Resources folder at the top of the Hepatitis page.  You will find a lot of info in there and will know more what to expect.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


xxSunnysideoflifexx
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/12/2009 7:30 PM (GMT -7)   
Hello Unsettled.
I am new to the forum and recently experienced the same issues with my 62 year old mom.
Here goes.............................................. two and 1/2 weeks ago she was alert, vibrant, driving, grocery shopping etc. She bent over to pick up a lottery ticket that fell on the floor. Upon rising she said she felt electrical impulses through her back, that was on a Saturday. The next day, she was so-so, but having a hard time walking. By Monday, she was unable to walk, still alert, but I could see she was in pain. The entire week, she crawled to the bathroom, etc.

On Saturday, October 3, I took her to the hospital ER. The MD said, oh its sciatica. Gave us prescriptions for: Neurontin, Baclofen, Motrin, Vicodin. I filled the scripts on Sunday afternoon. By this time she couldnt even get out of bed.

Monday, October 4th, She slept till 12 noon.VERY UNUSUAL. I woke her up put her in the wheelchair, and served her and my son an early dinner of pot roast and mashed potatoes. I left for work at 3pm, with my 17 year old to be home shortly after.

At 830pm, I received a call at work to get home NOW!! I got home, my mom was incoherent, confused etc. I called 911. By 10pm she was in a coma.

History: My mom is an alcoholic of 40 years with the last year of being sober. The hard stuff, VODKA, RUM.

Initially, they thought an overdose of prescription drugs. NOT!! All were accounted for. Of course they admitted her and to this day is still in the hospital. She had tremors, while comatose.

Found out her ammonia levels have been critically high, Lactulose is not helping at this point. BUT she is awake, with some noted confusion, and will not be the same. I LOVE MY MOM, but I do not want to see her suffer with this disease.

We have opted for Hospice. I will be bringing her home tomorrow. I could have sent her to a Nursing Home, per the MD's recommendations, but declined. She needs 24 hour care. I hope this helps.

XXsunnysideoflifexx

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/12/2009 8:49 PM (GMT -7)   

Sunnyside, welcome to the forum.  You did the right thing, IMO, in getting hospice involved.  They are really the best.  My co-moderator recently went through something similar with her brother and he was placed in a NH.  It wasn't until hospice was called in that he got better care and finally passed peacefully.

I am sorry that your mom is so sick, but it does sound terminal.  My mother was also a lifelong alcoholic, so I can empathize with you.

My thoughts will be with you.  If you want to, you can copy your message and post it in a New Topic, so people can know you and your situation. 

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/12/2009 9:11 PM (GMT -7)   
Hello Unsettled and xxSunnysideoflifexx. Welcome to HealingWell. Sorry about your brother and Mom.

Unsettled, yes that seems like a quick decline. My husband's decline lasted about 2 years. But he was diagnosed with cirrohosis about 6 years before that. Once he accepted the fact that he was going to die if he didn't stop drinking he became a model patient and fought a good fight. He stopped drinking, took all his meds as directed and ate a very friendly liver diet. He even took walks and went to AA.

Sunnyside, Hospice is a wonderful organization. My husband and brother both were under their care during their final days. But I think their biggest help is to the family. At least they were to me. Was your mom diagnosed with liver disease prior to her been admitted to the hospital?


Thoughts and prayers for both of you......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


njpoetrygirl26
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 10/15/2009 9:07 PM (GMT -7)   

Hi

 

I am new to this site...I can tell you that my brother was in a coma for 13 days some years back...and he was just like he was sleeping..no movements at all...his coma though was due to a gun shot wound to the head..I am not sure about this disease and if it is different...I am very sorry you are going thru this...please hang in there..my prayer's are with you.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/15/2009 9:17 PM (GMT -7)   

NJPoetryGirl, I'm sorry to hear about your brother.  Did he survive?  Most people don't survive such an injury and, if they do, are greatly impaired.

What brings you to the Hepatitis Forum this evening?

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


njpoetrygirl26
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 10/16/2009 6:07 AM (GMT -7)   

Hep,

 

Yes my brother survived the injury, but with some brain damage..and physical disabilities.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/16/2009 10:21 AM (GMT -7)   

NJ, I'm sure you and your family are glad he is still with you, regardless of impairments.

Thank you for starting a new topic to introduce yourself and your situation.

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 10/16/2009 11:48:25 AM (GMT-6)


njpoetrygirl26
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 10/16/2009 12:56 PM (GMT -7)   

Connie,

 

Thanks for your comment..on my brother..I wished I did feel that way..but unfortunately..there is way more to the story of his condition..my brother survived for 10 years after he was shot and in a coma..only to flip out one night in a argument with my Mom and kill her...he was drunk..and blacked out. he has been in prison for 12 years now and will be coming up for parole soon...he twins boys were 10 years old at the time...I have raised one of his twins as my own son...he calls me MOm..his other twin was raised by my oldest sister...they are now 22 years old..I have not seen my brother in 12 years..the thought of him getting out scares me a lot...


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/16/2009 3:02 PM (GMT -7)   

OMG, NJ!  What a terrible thing to have happened.  Bravo for you for taking one of the boys and raising him as your own.  If you feel unsafe, you can ask to be notified prior to his release so you can take any steps you feel are necessary to protect yourself.  People in blackouts don't remember what they do.  It's unlikely he would repeat such behavior, but who knows what the years in jail have done to him?  You have to protect yourself and your family.

Big virtual hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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