Hello, Unsettled, and welcome to the forum! I think you will find a lot of useful information here, as well as tons of support. I'm very sorry that your brother has ESLD. Has a transplant been mentioned at all?
From what I've read posted here by caregivers, the comatose state is usually very peaceful. They are simply unresponsive. What are some of the symptoms that your brother currently has?
Unsettled, the mental problems are from a buildup of ammonia in his brain. Is he being given Lactulose? Perhaps it needs to be increased. He certainly didn't do himself any good by continuing to drink, even occasionally. That is the worst possible thing that a person with liver disease can do.
Check out the Hepatitis Resources folder at the top of the Hepatitis page. You will find a lot of info in there and will know more what to expect.
Sunnyside, welcome to the forum. You did the right thing, IMO, in getting hospice involved. They are really the best. My co-moderator recently went through something similar with her brother and he was placed in a NH. It wasn't until hospice was called in that he got better care and finally passed peacefully.
I am sorry that your mom is so sick, but it does sound terminal. My mother was also a lifelong alcoholic, so I can empathize with you.
My thoughts will be with you. If you want to, you can copy your message and post it in a New Topic, so people can know you and your situation.
I am new to this site...I can tell you that my brother was in a coma for 13 days some years back...and he was just like he was sleeping..no movements at all...his coma though was due to a gun shot wound to the head..I am not sure about this disease and if it is different...I am very sorry you are going thru this...please hang in there..my prayer's are with you.
NJPoetryGirl, I'm sorry to hear about your brother. Did he survive? Most people don't survive such an injury and, if they do, are greatly impaired.
What brings you to the Hepatitis Forum this evening?
Yes my brother survived the injury, but with some brain damage..and physical disabilities.
NJ, I'm sure you and your family are glad he is still with you, regardless of impairments.
Thank you for starting a new topic to introduce yourself and your situation.
Post Edited (hep93) : 10/16/2009 11:48:25 AM (GMT-6)
Thanks for your comment..on my brother..I wished I did feel that way..but unfortunately..there is way more to the story of his condition..my brother survived for 10 years after he was shot and in a coma..only to flip out one night in a argument with my Mom and kill her...he was drunk..and blacked out. he has been in prison for 12 years now and will be coming up for parole soon...he twins boys were 10 years old at the time...I have raised one of his twins as my own son...he calls me MOm..his other twin was raised by my oldest sister...they are now 22 years old..I have not seen my brother in 12 years..the thought of him getting out scares me a lot...
OMG, NJ! What a terrible thing to have happened. Bravo for you for taking one of the boys and raising him as your own. If you feel unsafe, you can ask to be notified prior to his release so you can take any steps you feel are necessary to protect yourself. People in blackouts don't remember what they do. It's unlikely he would repeat such behavior, but who knows what the years in jail have done to him? You have to protect yourself and your family.
Big virtual hugs,