Post Edited (nasalady) : 10/11/2009 11:52:24 PM (GMT-6)
Granny G, welcome to my world. you are indeed fortunate to have family to help. I am in this by myself, except for help that I pay for, which isn't much.
Did I miss something in your original post? Do you also have cancer?
The confusion and memory problems could be due to hepatic encephalopathy, which is buildup of ammonia in the brain. Have you been placed on Lactulose? There is info about that and liver disease info in the folder at the top of the Hepatitis Forum entitled Hepatitis Resources. I think you can get a lot of helpful info if you read that. I believe knowledge is power. The more you know, the more control you have over your own treatment and life.
Also the swelling you mentioned could be from ascites or fluid in the belly. If your feet and ankles swell, that's edema. That is another liver disease symptom. (Can also be cardiac, but you didn't mention that.) Are you on diuretics? From what you have said, it seems to me that your liver disease should have priority. Are you seeing a hepatologist? Are you seeing specialists for your other diseases?
Regarding Hep C, there was no test for it before 1993. Some people did contract it from transfusions prior to that time, and I suspect you are one of them (when you had your C-section.) Unless the doctor used unsterile instruments that had been used on a hep C patient before you. Even then, it's highly unlikely that you could have contracted it that way. I can almost guarantee it was through a transfusion, as it is a blood-borne disease. Actually, any children born after you contracted it, should be tested for hep C, as there is the slight possibility of passing it on during childbirth.
I understand how you feel about being sick of being sick. In addition to the liver cancer, etc., I have osteonecrosis (a condition in which the bone in large joints dies and disintegrates) and in the past 7 yrs. have had bilateral hip replacements and 3 revisions, the last being 2 mos. ago today. I am hopeful that will be the last surgery on my hips...or anywhere!
I don't get out much (never have driven, being NYC raised), but mainly to the doctor, grocery store, and to get my hair and nails done about every 6 wks. I recently moved to a sr. apt. complex where there are a lot of activies, but I am just not up to participating in any. I do think I will look into massage, though.
You hang in there!
Boy, that hospital sounds great! Mayo has good food, but nothing like that, I assure you. The problem there is that you have to call in your order daily. If you are sleeping or forget--too bad and you miss a meal. One night I had a mustard sandwich, as that's all that the nurses could scrounge up for me when I woke up around 8 PM and the kitchen was closed. That was during a previous hospitalization.
Granny, you have confirmed the transfusions. That's how you contracted the hep C. Which is pretty awful, but as I mentioned...no test prior to '93.
We will all support you as you cope with your health problems. I am sure you fit into some other categories on Healing Well, also.