need a question answered for my mom

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worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 11/8/2009 8:12 AM (GMT -7)   
my mom has been hurting in her belly and when she eats the pain is worse and then she gets sick and then stomach stops hurting her. she went to the er but they said it was a uti and gave her a shot and pain meds and meds for uti. the pain subsided while on pain meds but has continued now that she is out. they refused to do a blood workup and we are afraid that it is not the uti that is causing this issue, as i never have heard of a uti causing you to be sick when eating and after her meds her symptoms should be gone by now, and i am wondering if it is her liver causing the issues. her liver doc says he wont see her til the 18th when her appointment is but i feel that her liver is the culprit. has anyone had these issues and is there anything we can do to help it as she cant eat because of the pain it causes.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/8/2009 9:13 AM (GMT -7)   
It could be an ulcer.  Her stomach may be rebelling from all the booze she's poured into it--even if she is not drinking now.  I know that end-stage liver disease patients sometimes have pain, though.  You really won't know until further testing is done.  Meanwhile, see if she will drink Ensure or Carnation Instant Breakfast.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 11/8/2009 9:28 AM (GMT -7)   
thanks i was j ust curious. it seems unless i go to the doctor or the er with her that they just dont run the proper tests. to me they should have done and xray or something to find out why the belly is hurting and she cant eat. it frustrates me so much and when i cant take her to the er and she goes alone its worthless. she has no idea how to get the doctors to listen. sometimes i feel like i have a second child lol. you are right she has had ulcers before i guess i am worried her liver is getting worse. she mentioned last night she thinks her liver could be dying more. maybe she is feeling it and doesnt realize. if it wasnt for ensure she would be down to nothing. she has already went from 104 to 98 lbs and i know her liver doc is not gonna be happy.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


allie2631
Regular Member


Date Joined Mar 2008
Total Posts : 313
   Posted 11/8/2009 4:41 PM (GMT -7)   
i know my mum holds her stomach a lot,it is swollen and i know she gets a lot of pain. i know her liver gets swollen, and she also goes through periods of not being able to eat, when she does she gets so sick afterwards. she does like really sweet things can sometimes eat loads of chocolate, drink hot chocolate instead of other healthy food. her immune system is very low, and she constantly takes infections, urine infections have made her quite ill before. her condition affects many parts of her body from head to toe not just the liver. Dont' know if this is any help sad

worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 11/8/2009 6:28 PM (GMT -7)   
Thanks Allie it does help, I still think they should have checked her blood and at least do a ultrasound. I do fear my mom is getting worse and I am afraid that when she does I'm gonna have to take time off work that I can't afford to take care of her as I don't have any help already. My sister will not take time off work, but I am jumping ahead. Has anyone had to take time off work to be caretaker and can I still get paid for it?
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/8/2009 9:25 PM (GMT -7)   
Worriedgirl, We have the Family Leave Medical Act (FMLA), Some states will pay you 2/3rds of your wages for a while if you work for a big enough company. I do know that CA is one of them, not sure of the others. But if you file for it at least it will protect your job while you are out. Go on your states website and it should be there somewhere.

When my husband got real sick, I went out on stress for myself and got state disability.

Hope this helps..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


allie2631
Regular Member


Date Joined Mar 2008
Total Posts : 313
   Posted 11/9/2009 1:51 AM (GMT -7)   
i am not sure how funding in the States is for a caregiver. But I know you could go to the doctor saying you can't cope and they should give you a line. after all you have to make sure you have at least a little money coming in, if not that would definately add to your worries.
maybe although your mum might go the ER for pain, but she might be quite happy within herself to listen to any explanation the doctors might give. if she is anything like my mum, she does noe want to face upto the truth, just wants a quick fix to sort the pain but does not really want to know the cause, because deep down she knows the cause but does notwant to admit it. my mumgets very annoyed when I speak to doctors, she would say i have to be really nosey wanting to get to the bottom of things and that i think I know everything.
Hospitals seem very different in the states
Mostly every time my mum goes in she has ct scans, loads of bloodwork, x rays even mri scans. i have lost count of the amount of tests she has done. It propably has something to do with your health insurance over there. a big down side is that every time she goes in, a new set of notes is made up, you have to tell them the whole story again because it can take up to a week to get her notes, this can make things really difficult if you forget any of her history.they tend to just treat her for what she came in with, but they hardly ever treat her body as a whole.
I think sometimes too much information is a bad thing. From what I have been reading over the years is that this disease can be different for every person, that makes it more difficult to treat.
Remember to think of your own health, its easy to forget when you are worrying over someone elses.

allie2631
Regular Member


Date Joined Mar 2008
Total Posts : 313
   Posted 11/9/2009 1:56 AM (GMT -7)   
i am not sure how funding in the States is for a caregiver. But I know you could go to the doctor saying you can't cope and they should give you a line. after all you have to make sure you have at least a little money coming in, if not that would definately add to your worries.
maybe although your mum might go the ER for pain, but she might be quite happy within herself to listen to any explanation the doctors might give. if she is anything like my mum, she does noe want to face upto the truth, just wants a quick fix to sort the pain but does not really want to know the cause, because deep down she knows the cause but does notwant to admit it. my mumgets very annoyed when I speak to doctors, she would say i have to be really nosey wanting to get to the bottom of things and that i think I know everything.
Hospitals seem very different in the states
Mostly every time my mum goes in she has ct scans, loads of bloodwork, x rays even mri scans. i have lost count of the amount of tests she has done. It propably has something to do with your health insurance over there. a big down side is that every time she goes in, a new set of notes is made up, you have to tell them the whole story again because it can take up to a week to get her notes, this can make things really difficult if you forget any of her history.they tend to just treat her for what she came in with, but they hardly ever treat her body as a whole.
I think sometimes too much information is a bad thing. From what I have been reading over the years is that this disease can be different for every person, that makes it more difficult to treat.
Remember to think of your own health, its easy to forget when you are worrying over someone elses.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/9/2009 2:56 PM (GMT -7)   

Worried Girl, the Family Medical Leave Act is your best bet.  It should cover days that you have to take off work to be with your mom.  If you were living with her and acting as a live-in caregiver, you could get compensation for that from the State.  But I know that is not the case.

ERs do not keep medical records.  They always start a new chart when they see a patient.  However, some hospitals/clinics like Mayo are paperless.  They can pull up a patient's medical records on the computer, regardless of who they are seeing.  This is much more efficient, as they can see what meds have been prescribed, what the primary diagnosis is, dates of hospitalizations, known allergies, etc.  Without this medical record access, it is important to have on hand names/dosages of current medications, diagnoses, dates of hospitalizations and what they were for, etc. 

Another thing that shouldn't be a part of medicine, but truthfully is:  They are less inclined to run tests, spend time, etc., with a practicing alcoholic or drug addict, particularly if this patient is a "revolving door" case.  Some doctors feel it is a waste of time to treat this type of patient and resent having to do so.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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