I need Advice and answers. Please Help

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metalguitarist1
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/10/2009 3:36 PM (GMT -7)   
Hi, I have Hep C and Cirrohisis final stage. I just had a Tap done almost 2 weeks ago. Seems I feel my stomach getting swollen again. Will I have to go every 2 weeks to have this done? Besides that problem and painful stomach, I feel great. My viral load was over 600,00 in august. I started taking this stuff that brought it down to 267,000 My platlettes were low around 57 in auguust and now they are at 74. I am also taking some stuff for this. None of it was from any of my doctors. I found a man who suffered from Hep C and told me what could help. He did say that the other stuff I am taking would probably work if I took it 3 times a day, but it is to expensive to take that much. Am I dying or what? how much time would I have left? does anyone know?

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/10/2009 4:04 PM (GMT -7)   

Hi, Metalguitarist, and welcome to the forum.  When were you diagnosed with hep C and cirrhosis?  Have you had a liver biopsy?

Regarding the removal of fluid from your belly, how often you will need to have it done depends on how quickly the fluid builds up again.  If you are having to be tapped frequently, a TIPS (transjugular intrahepatic portosystemic shunt) procedure might be recommended.  This would shunt the excess fluid away from your belly.  Like any invasive procedure, it carries risks with it.  This is something to discuss with your physician.

Since you are feeling quite well, aside from the ascites, I doubt you are anywhere near "the end."  Are you seeing a hepatologist?  Has the possibility of a transplant ever been mentioned?  Have you had "the combo" treatment for hep C?

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 11/10/2009 4:23:09 PM (GMT-7)


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/10/2009 6:43 PM (GMT -7)   
Hello metalguitarist1 and welcome to HealingWell. Sorry that you have been diagnosed with this disease. A person can live a long time with it if they take care of themselves and follow doctor's orders.........Read our educational thread in the resource folder at the top of the first page of our forum.

Take care....thoughts and prayers..
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


metalguitarist1
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/10/2009 7:07 PM (GMT -7)   
I have had Hep C for 20 years and didn't know I had Chronic Hep C. I had a liver biopsy done 2 years ago. They told me that I was at Lvl 4 of Cirrohisis, which they explained that this was the last stage of it. I have not had to have my stomach tap until last week. Yes I have been seeing a doctor, now I will have to see a Liver specialist, and they say they want to put me on a Liver transplant list. When they told me that My viral load was at 40,000,000 That was very high That was 3 years ago. I hade it checked again last year and it was at 7,000,000 and again I had it checked in august and it was at 647,000 That is a big change. I started taking this stuff from a website called Lloyd Wright. I have been taking this stuff for almost 2 months and the viral load has went down to 267,000 I feel better and have more energy. But I still have problems with this Ascities.  if I could somehow get this under control I think I will have a better chance of controling the Hep C. The stuff is expensive but seems to work. Im not cured or anything like that but I do feel much better when I take the stuff. I get out more with my family and work everyday. I'm hoping to see my ast alt go down as well. If I can get all this under control them I beleive I will live a longer life.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/10/2009 9:30 PM (GMT -7)   

MG, where you will be placed on a transplant list is according to your MELD score which is calculated by adding your creatinine, bilirubin, and INR, not your viral load.  The higher the MELD score, the higher on the list you will be.  If you are referred for transplant, they may require that you stop taking the herbals that you are currently taking.  I don't believe you can "get the hep C under control" doing what you are doing.  The only currently approved treatment is the "combo," which is ribivarin and interferon.  We cannot advocate specific alternative treatments on this forum.

After you meet with a hepatologist, he will ascertain if you meet the requirements for transplant evaluation.  There are many, many tests and meetings with various medical personnel prior to being listed.  Please do follow up on this.

Best of luck to you.

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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