How To get rid of the bloating and puffy feet and legs

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/14/2009 6:54 AM (GMT -7)   
Hi, I have Hep B and have had it for about 25 years... It is only just the last few months that I have been having problems with my stomach it looks like im pregnant which would look beautiful if it was on a women but not so good for me, my feet are very puffed up as well and some mornings I wake with extreem pain from the fluid build up. My Dr has just sugested that I go on the list for a transplant and that scared me that I couldn't cope with it and just didn't go back for a while. After reading many post on this site I can see that im not alone, although I have not seen any on what to do to eleviate the bloating. Im not sure what I should do. If you can help with some advice on what I should avoid eating and what I should eat that would be a help to start with. the whole thing is making me so depressed. Im getting back aches also I guess from the excess fluid Im carring around. eyes
I am also new to this site so I hope I have posted all in the right place and stuff

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/14/2009 9:25 AM (GMT -7)   
Hello daycap and welcome to HealingWell. That bloating is ascites. Are you taking diuretics? If not that should help with some of the water retention. Also with cutting back on your fluid intake some. Did your doctor refer you to a hepotologist? You really need to see a specialist for this disease. It's a scary disease for sure, but you need to start taking action now.

Please read our educational post in the resource thread at the top of our forum. It has a lot of good information...

Take care and welcome again........thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/14/2009 1:08 PM (GMT -7)   

Daycap, I also want to welcome you to the forum.  PG gave you some good info and advice.  You probably should be on a diuretic if you are not now.  If you ARE on one, you may need to increase the dosage.  I have hep C, cirrhosis, and am a liver cancer survivor.  I had terrible ascites and swelling of my lower extremities.  It took awhile to get it under control, but it is now.  I take 20 mg of Lasix and 100 mg of Aldactone daily.  Also, it's very important to be on a low-sodium diet.  Salt will cause fluid retention.  You can substitute lemon juice or salt substitute.  Meanwhile, you really should see a hepatologist to get blood work and perhaps a CT scan, so you can better know the condition your liver is in right now.  You may need to be evaluated for transplant--or maybe not.  You won't know unless you take your head out of the sand and get some professional care and advice.

BTW, you are right about the back pain being from the belly weight.  Any woman who has been 9 mos. pregnent can relate to that.  I also had low-back pain when my ascites was out of control.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/14/2009 5:59 PM (GMT -7)   
Thanks for the fast reply I am taking Spiractin and a herbal diuretic and milk thistle but all these don't seem to be working all that well, today I feel so bloated and with pain from that. I need to know what foods to avoid and what foods I should eat lots of. I don't have much faith in our hospital service here after the last few trips to the hospital they didn't know what was wrong and just sent me home... I had a ct x-rays and heaps of blood tests... I didn't feel well enough to go home but they sent me home after 4 days of starving me and the swelling went down... but as soon as I was home and started eating it just all came back. I can hardly do anything at the moment its just too uncomftable. I woke up the other morning in heaps of pain, I guess this is all part of it. I will take your advice though and see a hepatologist as I feel that its just getting worse. I was healthy years with Hep B so you can see how this is a shock to suddenly become so sick like this. Thanks for your support It was so refreshing knowing that im not alone with this condition.

Thanks

Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/14/2009 7:50 PM (GMT -7)   

Chris, fortunately food labels now list the amount of sodium.  Become an avid label reader.  Things to avoid would be canned foods and frozen dinners, club soda and some other sodas, cured meats like ham or jerky, potato chips and other snacks with lots of salt.  If you buy canned beans, rinse them before using.  That will get rid of some of the salt.  But fresh or frozen veggies are best.  Also lots of fresh fruit.  My viral load is down to 38,000 from 300,000 in April.  I can only attribute that to diet.  Avoid red meat, as it is difficult for the liver to digest. 

When you see a hepatologist, ask about being put on Lasix.  It is a stronger diuretic.  Since it depletes the body of potassium, you would also have to be on Aldactone or a potassium pill along with it.

I understand how you feel.  I was diagnosed with hep C in '93.  I wasn't able to tolerate treatment, so from '94 on, I just went about my business and didn't think about it much...except that I was so fatigued I could only work part-time.  Then, in '05, I was diagnosed with hepatocellular carcinoma on a routine sonogram.  I knew hep C could lead to that, but never thought it could happen to me.  So I've been where you are.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/14/2009 8:49 PM (GMT -7)   
Thanks Connie all I can say is im sorry you have had to go through this, Its very hard for me as im usually a very active person and today all I want to do is lie down and sleep... my stomach feels so tight. thanks for that advice I will ask the doctor about Lasix. my boss has been very supportive for me but I feel that she will have no choice but to put me off and I don't feel that im being very fare with all the time I have had to take off. She put on another person but she didn't turn out and it is a very busy time of the year right now. anyway I will sort that out getting well enough to work is my first priority. my liver must be in a bad way as my gp was sugesting a liver transplant... what about the red spots are they common and do they disapear im getting them on my face and even brusing I just look terrable right now, depression is sinking in fast too. It is so nice to have the support of ppl here thanks guys.

Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/14/2009 9:52 PM (GMT -7)   

Chris, I'm not alone.  There are thousands of others going through the same or much worse.

How about suggesting decreased hours at work...even if just an hour or two less a day, it could make a difference.  When I initially went to P/T work, I worked 30 hours a week.  I didn't take lunch.  I'd have a Slim Fast shake at my desk.  Most places require at least 35 hours to maintain health insurance.  Are you insured?  You also might want to start an application for SSI or SSD, especially if you get laid off.

Fatigue is the main symptom of any kind of liver disease.  I sleep at least 10 hours and usually 12 at a stretch.  However, the fatigue never completely goes away.  Without sufficient sleep, I cannot function at all, though, so it's something I have to do.

The red spots are spider angiomata and are a result of liver disease.  They do disappear at times.  Mine are not as prominent now as they once were.
 
The first step is to see a hepatologist and be evaluated.  If he thinks you might be a transplant candidate, he would refer you to a transplant center.  They would then put you through lots of tests, including psychological testing.  They would calculate your MELD score and determine if you should be listed at this time.  There is a lot to the evaluation process and it's not as simple as just going and getting a transplant.  Take one thing at a time, so you don't become overwhelmed.   Make an appt. with a hepatologist and have some testing and maybe a biopsy done.  You might also need to go on an antidepressant for awhile.   Chronic illness does often result in depression.  I was on an antidepressant for about a year, but no longer feel the need for it--which doesn't mean I might not again some day.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/14/2009 10:16 PM (GMT -7)   
Thanks again Connie, I will make an appointment with a hepatologist as soon as possible, I am in Australia so we don't need health cover our public hospitals cover us I know it seems strange but we have a choice if we want to get private health cover or not... without it just means that you go into the public health system with cover you can go to a private hospital which usually don't have all the specialast equipment anyway so your better off in the public health system.
good to know that the red spots disappear as it makes shaving difficult, I nicked the top of one the other day and it just wouldn't stop bleeding I had to apply about 20 bandaids, not a good look on my chin. I have had a biopsy done about 6 months ago.
do you know what is best to take for pain, I know that panadol isn't good for your liver but feel better after taking two today... there must be something that is ok to take that is easy on the liver. as it hurts to just move sometimes.

Thanks

Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/14/2009 11:43 PM (GMT -7)   
I'm glad that you have medical coverage.  We might be going in the same direction in the US, as they are trying to push through a bill that would make coverage mandatory and available for everyone.  Some don't like this idea, but if they are happy with their current coverage, they can keep it.  Do you have to wait a long time for appointments?  I've heard that is the case in Canada and the UK.
 
What were the results of your biopsy?  Did you get the radiology report?
 
Your pain is likely caused from the pressure of the fluid.  It should decrease if you can get rid of most of the fluid.  I really can't recommend a pain medication, as that is an individual matter.  You might ask your doctor about Darvon as it has no anti-inflammatory in it, which is what they usually want liver disease patients to avoid.  I personally take Lortab and my doctors seem to be okay with that; however, you really need to consult with your hepatologist or--if the pain is really bothersome--give your primary care doctor a call.  There also may be pain meds in AU that aren't available here.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Kierstin
Regular Member


Date Joined Nov 2009
Total Posts : 79
   Posted 11/15/2009 9:24 AM (GMT -7)   
Avoid commercial salt substitutes containing potassium if you are put on a diaretic such as Aldactone or Spironolactone or any diaretic ending "actone". These diaretics are potassium inhibitors, given in conjunction with a very strong diaretic called Lasix, which expels a great deal of potassium from your system. The two diaretics work together to manage a proper level of potassium in the body. Many salt subsitutes contain pottasium instead of sodium, and can screw with this balance. I suffered from severe Ascites once myself and it sounds like the doctors should be draining the fluid from your abdomen at least initially in order to reduce the pressure and amount of fluid being retained. After this you will be put on a low salt diet and given prescriptions for diaretics and pain. Ascites is miserable, I remember very well. But you can get rid of it, just keep insisting on drainings when the pressure builds and the pain gets intense. Watch your diet and take the diaretics religously.

A good way to avoid salt is simply using lemon and various herbs to season food. This works well especially well on chicken (Lemon chicken - yumm!). Spicy stews, soups and curries will benefit instead from even more heat-inducing spice (if you can take it) and a scant 1/8 teaspoon of sugar or less per potful while cooking. Salt is a flavor enhancer in addition to just being "salty" and brings out depths of flavor and works well to allow various flavors in a stew or curry to blend together in harmony. A little known fact is that sugar is also a flavor enhancer, and in very small amounts is not noticible to the palate, especially in spicy foods, but it performs the same blending and flavor enhancing duty as salt.
Google "low salt diet" for lots of information and ideas about reducing the salt in your diet.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/15/2009 11:31 AM (GMT -7)   

Kierstin, thanks for that information.  I did not know that salt substitutes have potassium.

I didn't suggest drainings as I thought his doctor might want to increase his diuretic or change to a different one first, along with a low-salt diet, before taking that step.  They will normally want to try conservative measures first.  But it is something that he might mention to his hepatologist, once he makes an appt. with one.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/15/2009 5:33 PM (GMT -7)   
Thanks guys, I know I will feel a whole lot better when I don't have this bloating so I will check out on low salt diet in google, Hay is spicy food ok, I love spicy food but thought It wasn't good for me so I haven't had it for a while.
I knew someone who was having drainings done and he couldn't stand it so he just stoped then he died but I know he was also addicted to pain killers and drank a lot so it was most likely that that killed him. but makes me think that it might be a painful procedure, is it?

you guys are so helpful thanks for being there.


Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/15/2009 7:15 PM (GMT -7)   

I don't think draining is painful, but I'll let Rick or someone else confirm that.

If you can tolerate spicy foods, there's no reason you can't eat them.  Or add spice to your foods to substitute for salt.  Since my hernia surgeries, my palate changed and I cannot tolerate anything too spicy now.  Weird.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/15/2009 7:33 PM (GMT -7)   
I will have to educate my mother... My favorite food is spagatti bolinaise and i make that spicy is spagatti ok or low in salt I usually make it with a sauce from coles

I have been looking up lots of recipies for low salt meals and have a lot that look nice, will have to make them when I feel more motevated and at the moment being the size of a pregnant woman and back ackes and lack of energy, so I guess Ill have to wait and rely on my mother. One thing I was supprised by was the amount of products in au that have too much salt in them.

Cheers

Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/15/2009 9:19 PM (GMT -7)   

It's unbelievable how much sodium is in our food.  Definitely don't add more at the table or when cooking, if possible.  I just checked the label on my Barilla Angelhair Pasta and it says 0 sodium.  It's what you put on the pasta that usually has sodium, such as sauce made from canned tomatoes--and, especially, cheese.  It's a matter of training the palate.  Once you get accustomed to eating less salt, things that are salty will taste REALLY salty to you and not palatable.  Same with sweets.  Try to purchase lower-sodium foods or salt-free, labeled as such.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/15/2009 10:45 PM (GMT -7)   
yeah well I seem to get the munchies and was eating chips and drinking solo loved the solo as it helped me burp and that feels good when bloated, now I did a shop and checked the sodom levels and found heaps of sweets that I can snack on.
 
Thanks Guys you have been a great help
 
Cheers
 
Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/16/2009 9:33 PM (GMT -7)   

Yep, stay away from the chips.  Haven't heard of Solo soda here.  Did you check the sodium level of it?  I drink spring water and Sprite Zero which has no calories and no caffeine and is very low-sodium.  I also drink green tea.  Sweets are my downfall and I have to watch them these days as they will pack on the pounds.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/19/2009 6:54 AM (GMT -7)   
sorry guys for taking so long to reply but I was admitted to hospital the acidity was too painful I couldn't bend over or sleep on any side and well you know what its like I guess.... I have had some fluid drained and the relief was amazing. Im still having lots of tests and an ultrasound tomorrow... thanks for all those who suggested I do something about it very soon as I feel so much better right now.
by the way Solo is a nice lemon drink.

Well I had better head to bed right now for more test await me tomorrow.

Cheers

Chris

ooo

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/19/2009 9:03 AM (GMT -7)   
Hi Chris, so glad that you are feeling better. But be careful not to drink too many Solo's. nono

Damaged livers can not function properly. Drink too much fluid and you will develop ascites again, and need to be drained again. Some patients can control their edema and ascites with diuretics, low sodium diet and fluid intake reduction. Some have to have their abdomen drained every so often or have the TIPS procedure.

It a tough balancing act with all the meds, diet and exercise that's for sure. Are you under a Hepatologist's care?


Take care........thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/19/2009 2:01 PM (GMT -7)   
Hi,thanks for that advice, I will avoid solo... I am under a specialast though and they are doing heaps of tests, I am hopeing that my liver is not too damaged, at first I thought the acities was coming back but it looks heaps better today, I will ask to speak with a natritionast before I go home...
 
This whole thing has kind of crept up on me and I feel its happening all very fast... I don't have a problem with not eating red meat as I mostly love chicken and fish.
 
its amazing as I look down at me legs and see that they look more normal and I can see my ancles.
 
Cheers
 
Chris

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/19/2009 3:15 PM (GMT -7)   

Chris, I'm so glad that you got treatment and are feeling better.  When I was bothered by fluid in my legs, I found it helped to walk.  If I sat too long, my ankles and calves would swell.  Some find that happens with walking, but for me it helps.

Let us know how your tests come out!

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


daycap
New Member


Date Joined Nov 2009
Total Posts : 12
   Posted 11/19/2009 11:13 PM (GMT -7)   
I sure will... i have had lots of tests and will know soon... since they drained some fluid out of my abdmin the swelling in my feet seemed to go down they will drain some more on Monday... It looks like a long stay here in the hospital for the moment but I have lots of movies and things to watch.

Thanks Connie
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 7:01 PM (GMT -7)
There are a total of 2,732,351 posts in 301,012 threads.
View Active Threads


Who's Online
This forum has 151172 registered members. Please welcome our newest member, Whydoesithurtsomuch.
294 Guest(s), 13 Registered Member(s) are currently online.  Details
Psilociraptor, hateuc, AnxiousTexan, orchid_rain, Girlie, rocckyd, LG13, time2reclaim, UCAvery, Hawaii3654, Fairwind, Ggrlsav, DutchessCountyJim


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer