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rachelsmom2003
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/16/2009 10:02 AM (GMT -7)   
Hi, my name is Kelly. My dad was diagnosed with hep c about 4 years ago. He got it thru a blood transfusion when he was born and it was never detected. He has tried all the experimental drugs and they didn't help. Just over a week ago he was rushed to the hospital. He has a blockage in his bile duct, his gall bladder needs to come out, and he is in liver failure. They are moving him to Jackson Memorial Hospital in Miami Fl. He has aslo developed acis*** (fluid in the abdomen). I am wondering if anyone else has had a case similair to this and could give me some insight into what will happen next. I don't even know if he qualifies for a liver transplant yet, we'll know within the week. My dad is 50 years old and until recently a very healthy man. I live in Tn and can not ask the docs the questions I desperately want to know....Time frame? Will he make it? you know the typical questions..... thanks for listening, and pray for my dad if you could! cry

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/16/2009 12:25 PM (GMT -7)   

Rachelsmom, welcome to the forum!  I am so sorry that your dad is so sick.  I also have hep C, diagnosed in '93, and am a liver cancer survivor.  I have been to Jackson Memorial, myself, when I lived in Miami years ago.  Your dad may be a candidate for a liver transplant.  Due to his condition, they may fast-track him through the evaluation process.

I suggest you read through some of the other threads here, as well as the information in the folder, Hepatitis Resources, at the top of the forum page.  You will get a lot of information that way. 

We are not doctors, and even doctors have a hard time giving an estimate as to how long a person with liver disease will live, as it's such an individualistic disease.  Ascites is not life-threatening.  Most liver disease patients have it and it is managed with diuretics and draining of the fluid, and sometimes a TIPS procedure to shunt the fluid.  The blocked bile duct is more serious.  They will have to determine if he is stable enough to undergo surgery to remove his gall bladder, or if they should try to get him on a liver transplant list and remove it at the time of transplant.  The gall bladder is attached to the underside of the rt. lobe of the liver.  I had mine removed when the rt. lobe of my liver was removed due to cancer, and I can't tell the difference.

Your father certainly has our prayers.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


rachelsmom2003
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/16/2009 3:25 PM (GMT -7)   
Thank you Connie... If you don't mind, I'd like to pick your brain a little.... Did you have a liver transplant? If so how sick did you get before they found you one? Are you generally healthy now? I found out today they placed a stint in the bile duct for now. I don't know if that means his gall bladder issues are temporarily stable or not. It is so hard for me being so far away because I can't ask the questions I want to know, my mom is doing a good job though. My dad is my hero and I need him to be okay!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/16/2009 9:27 PM (GMT -7)   
Rachel'smom, no, I didn't have a transplant.  I went to Mayo because I thought I would need one when I was diagnosed with hepatocellular carcinoma...and the tumor took up most of the rt. lobe of my liver.  However, it had metastasized to the inferior vena cava, a large vessel that comes off the liver.  The tumor had grown into it.  Therefore, I didn't qualify for transplant or even surgery at that time.  What saved me was a combination of chemoembolization and a study drug, TheraSphere.  I underwent both of these, a couple of months apart, and they shrunk the tumor and the metastasized part--and basically killed it--as well as the rt. lobe.  So they then removed the right lobe.  The cancer was the result of hep C, which I still have.  I'm not under treatment for it.  At this time, it's not felt that it is very aggressive, and I'm reluctant to be sick for 48 wks., which is what happens with the combo treatment.
 
Aside from the hep C, and feeling fatigued all the time, I'm basically healthy.  I have a condition known as osteonecrosis (bone death) which necessitated me having bilateral hip replacements in 2002 and '03.  They weren't done correctly, so I've had to have 2 revisions of the left one and one of the right one (just this past Aug.)  While ON can show up in other large joints, I'm hoping it won't with me and that I'm done with orthopedic surgery.
 
Since a stent was placed in your dad's bile duct, that will open up the duct and stabilize him for now.
 
If your dad isn't alcoholic, he could possibly be referred for transplant.   You should ask if he is a candidate or if they plan to refer him for transplant.  Given his current problems, they might be able to fast track the evaluation process.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


rachelsmom2003
New Member


Date Joined Nov 2009
Total Posts : 6
   Posted 11/17/2009 6:31 AM (GMT -7)   
I am really enjoying this site. Although there are stories on here that scare me, it is really helpful to have people to talk to that share his disease and some of the same complications. Thank You for your time you have given me hope where there was very little a few days ago. My dad is not an alcoholic, he has never had a drink in his entire life or touched drugs. That's what makes it so sad in my mind. My dad is a hardworking, extrodinary man! The doc came in to see him last night. They are sending him now to Miami university hospital. I am told that when he arrives he will go thru the gauntlet of tests and will then place him on the list if he qualifies. There are also talking about the small possibility of releasing him on an outpatient basis for the acisitis. We are praying and keeping our fingers crossed. Thank you for your kind words and prayers, you'll never know what it has meant to me!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/17/2009 8:57 AM (GMT -7)   
"you have given me hope where there was very little a few days ago."
 
And that is one of the reasons I co-moderate and tell my story.  I also want to give back in a small way for all the help I received during a very trying and scary time.
 
Big hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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