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Affected by Disease
New Member


Date Joined Nov 2009
Total Posts : 13
   Posted 12/10/2009 2:02 PM (GMT -7)   
My mom received an esophageal scope yesterday and there were no signs of varices. That's good. But now her ammonia spiked to 115 and she is on lacalose every 4 hours. Her acites is getting worse and she has adema in her legs. I asked about the Hepatologist and the doctor said "she just saw a G.I. specialist." Well crap. Stupid me. They didn't look at her liver, just her G.I. tract. They seem to think it's pointless to see a liver specialist. Why? No one knows how long she has and mabey if they know the extent of the damage they could gauge it. What should i do? just relax and enjoy the time she has left? 2 months, 5 years? How am i supposed to ignore the inevitable end? Why does her disease get to screw me up inside call all the shots and control me too?

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/10/2009 2:33 PM (GMT -7)   

I would insist on her seeing a hepatologist because she has liver disease and that is who needs to be following her.  Is she on diuretics?  If not, she should be.  If she is, the dosage may need to be increased to help with the edema and ascites.  I am glad to hear that she does not have varices, though.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Affected by Disease
New Member


Date Joined Nov 2009
Total Posts : 13
   Posted 12/10/2009 2:37 PM (GMT -7)   
The doctor said if i want to follow up with a hepatologist after she leaves the facility she is in i can. That is not until mid January. Why not now? I am going to insist. Thanks Connie.

worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 12/10/2009 9:39 PM (GMT -7)   
some local hospitals have hepatologists in the hospital, try and get her in there. i do think, im sorry if i sound crude, that the ammonia levels are extremely high and are not a very good sign as with the ascites and edema. but that is just noticing from what happened to my mom and in your moms case can be something totally different. if u need to talk i am here
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/11/2009 4:52 PM (GMT -7)   
Hello ABD, yes definitely insist on her seeing a hepatologist. Sometimes doctors are hard headed and need a little push. Start pushing.

Also if the lactolose isn't working she may have an infection somewhere. As about her taking Xifaxan. It sure helped my husbands ammonia levels......along with the lactolose.

Take care.........thoughts and prayers.............
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 12/11/2009 7:53 PM (GMT -7)   

PG, I was reading the post and I thought the same thing about infection. I know Xifaxan is a good antibiotic but one of the downsides about antibiotics is the killing off of good bacteria and some of the bad that we need. We found that Doug would get more bladder infections due to the extra yeast you develope while taking antibiotics. We put him on Acidolpholis everyday, 2 a day was all he needed, which equals large amount of active yogurt. It is also used by cancer centers to keep a healthy balance of bacteria in the digestive system, people who suffer from IBS also. My GYN said more women should use it as it helps to prevent yeast and UTI's. But it cannot be used POST TRANSPLANT per our center. I never asked why cause that wasnt a concern when I researched this and approached the DR's with it. They also stocked it at the hospital so they gave it to him as part of his regular med schedule.

Sue


When I started counting my blessings my whole world turned around.

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