end stage liver failure... help please

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allieb87
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/15/2009 11:48 AM (GMT -7)   
My mom has been drinking for the last 15 years. It had finally caught up to her. Last October she lost her eye sight and could not pick anything up because her hands and body were too week. We found out after three days of this going on. She was admitted to the hospital and the said they did not know if she would make it. Well she got her eye sight back and was able to return home. When in the hospital the doctors told her she would not make it to this Christmas if she did not stop drinking and smoking. Well she has not stopped either and Christmas is only a week away. Since that visit she has been in an d out of the hospital several times. She developed Ascites in July and Esophageal Varices in September. She has been admitted to the hospital several times for throwing up blood and for her ammonia levels being too high. Last week while in the hospital AGAIN she was told she has end stage liver disease. I am so scared and do not know what to do. I just want answers to how long and what to do now. If any one can help that would be great! Thank you very much!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/15/2009 12:45 PM (GMT -7)   

Hello, Allieb, and welcome to the forum.  I'm very sorry about your mom.  The symptoms she has been displaying ARE those of end-stage liver disease.  If you will go to the folder entitled Hepatitis Resources, at the top of the forum page, you will find a lot of info in there, including a discussion of "how much longer?"  Since each patient is an individual, it is impossible to estimate how long someone has.  I think some doctors try to scare patients into sobriety by telling them they only have 6 mos. to a year to live if they don't stop drinking.  But it's true that they are hastening their death by continuing to drink.  It's like pouring gasoline onto a fire.

Were her bleeding varices banded?  Is she taking Lactulose for the elevated ammonia levels?  Who is caring for her at home?  She could continue like this for months, or things could go bad very quickly.  If you read some of the older posts, you can get a sense of what happens--especially to those who continue to drink or who stop too late to affect the outcome. 

You are not alone and I am sure you will find lots of support here from those who have been through the same thing you are.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


allie2631
Regular Member


Date Joined Mar 2008
Total Posts : 313
   Posted 12/15/2009 3:14 PM (GMT -7)   
hello and welcome.I am sorry to hear of someone who is going through the same as myself and many others on this site. Caring for a parent with esld is an emotional rollercoaster. You will need to educate yourself a little, to let you know what is happening to your mum. My mum was told she had three months to live 21/2 years ago if she did not stop drinking. she has been in and out of the hospital many many times since then. It is hard because the tables are turned and the roles are reversed. I do not know if my mum has been the lucky one with her still being here. She has put herself through living hell and has no quality of life. She is hopelessly lost to alcohol addiction and it is going to kill her, i am watching the effects of it all and she is slowly dying a painful death, it is agony to watch. You want answers and you want them now as you need to prepare yourself the best you can to help your mum. When you read the old posts you will find that there is no definate answers, each person is unique. There has been many times i thought this is it for my mum, but she always surprises me by bouncing back. But each time it takes that little bit longer. My heart goes out to you. Find a way to keep caring for yourself, look after yourself and any family you have. Don'tlet her disease drag you down, she could be here for a long time yet, so keep strong.

Rose15
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/15/2009 8:37 PM (GMT -7)   
I am so sorry to hear about your mom, and understand how you are feeling. I am wondering the same thing. My dad also lost his eye sight about a year ago and it never did come back. He has been in an out of the hospital for a year. I don't live near by so did not understand the severity of it because he doesn't talk to me about his health. A week or so ago he told me that he had not been taking care of himself and hasnt been feeling very well. That he was unable to eat anything for months. A few days later I got a call telling me that he was in the hospital again. I went down this past weekend to see him in the hospital. He has no color to him (unsure if that is jaundice) I thought he just looked extremely pale. His hands and feet are extremely swollen, he is unable to walk and it very weak. He has a very bad shake in his hands, and can barely even move them to feed himself. I tried to talk to his doctor today but could not understand him with his accent. He also had to let me go because he had to go attend someone else. All i got out of him that he has liver failure. He has been an alcoholic for over 30 years now, and is only 50 years old. If anyone can tell me what stage of liver failure he is in, and how much time he possibly has left?

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/15/2009 9:32 PM (GMT -7)   
Rose, welcome to the forum.  I am sorry that you also have a parent being affected by alcoholism and liver disease.  I also suggest to you to read the information in Hepatitis Resources.  Here is a link:  http://www.healingwell.com/community/default.aspx?f=25&m=52986
Scroll down to Stages of Liver Disease.  You may recognize your father there. 
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 12/17/2009 2:48 PM (GMT -7)   
i completely understand where you are coming from. i just lost my mom thanksgiving week due to liver disease and it sucks. each person is different. for my mom it was slightly over a year of being diagnosed that she passed. one normally goes from the complications of liver disease rather than the disease itself. but i would suggest her getting help for the drinking and get her to see a GI.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are

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