questions about edema

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CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 12/30/2009 8:35 PM (GMT -7)   
 
Frank's edema has become very bad after his TIPS 3 weeks ago. His feet are becoming roundish, he has crackling of his skin, and a small rash. His doctor put him back on Lasix 80mg daily. It's painful for him to lift his legs to dress and his thighs rub together slightly.
 
Is this common?
 
What are the dangers of this?
 
Any suggestions on how to treat this?
 
Thanks & a blessed New Year to all

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/30/2009 9:33 PM (GMT -7)   

How long has he been taking the Lasix?  Is he watching his salt intake?  Does he have ascites or is it just edema?  Does he wear TEDS (thromboembolitic deterrent stockings?)  I had to wear them for quite awhile when I had edema.  There may still be some fluid retention issues after a TIPS.  I know that Rick had to be drained again at least once after his TIPS.  Hopefully, things will calm down in time.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/31/2009 11:45 AM (GMT -7)   

"Before someone ask " whats a dent test " ? : They poke your skin with there finger to see how quickly your skin will pop back out"

This is actually a test for pitting edema.  If there is none, it's zero.  If, when skin is pressed with a finger, it "dents" and takes 1 second to return to normal, then it is 1+ pitting edema, 2 seconds is 2+, and so on.   wink

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 1/2/2010 12:07 AM (GMT -7)   
CGR, It does take awhile for the stint to work.... have Frank elevate his legs as much as possible. Also dont use a lotion on his skin you need more of whats called a balm it is thicker and will help aleviate some of the cracking. Balms were used alot in the old days for hads and feet of farmers and it does work. Lotions are only short term relief for tightness. I hope his body will adjust soon, I would also read every label on food products learn how to watch for hidden sodium, like alot of frozen green vegetables are flash frozen with "brine"..... I will try to see what I have left here for some names of products.... I know Bag Balm was one
Sue
When I started counting my blessings my whole world turned around.


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 1/2/2010 7:08 AM (GMT -7)   

Thanks Sue,

I'll look for some balm today. We've been using lotion, but we'll switch now.

We're real sodium hawks. Shopping takes at least three times longer now and it's frustrating how manufactures hide the contents of food. Just for fun, we looked at a piece of smoked ham the other day. We knew the content would be insanely high, but we just wanted to amuse ourselves. Not only was it terribly high, but this one piece, which was honestly one typical serving size - not a large piece with chance of leftovers, just a regu;ar piece sufficient for dinner - was marked as 5 servings!! It's criminal how misleading some packaging is.


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 1/2/2010 8:00 AM (GMT -7)   
Thanks Rick,

We'll be out shopping today, so I'll look for Corn Huskers Lotion.

Also, Connie, I apologize that I didn't respond to your question. Frank was just put back on Lasix the day before I posted this, so 29 December. We know that it will take a while for it to kick in, so patience will be a lesson well excercised.

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 1/2/2010 8:03 AM (GMT -7)   
Good suggestion Rick....... Farmers had the right idea for alot of things. They are a hard working group of people and some on their linoments for live stock are great. We had a family friend with a nasty skin ulcer that Dr's couldnt do much for but let me tell you some ole black salve worked wonders. Dr said he couldnt recommend it but it was helping so please continue at own risk of course. It is amazing what we have at our disposal and dont realize it cause it is homeopathy and most Dr's are afraid to recommend...... can allow to many lawsuits I guess. Cgr and Frank I am so glad you are really paying close attention to different ways they hide sodium, just like sugar and its by products. I think way to many people get paid to sit around and mess with us on labeling products. With the change in fluid pills and the TPS Frank should start to see a change soon, is he limiting fluid intake also? If he feels thirsty sometimes fresh fruit can help to make it easier when restricting fluid, cold friut really helps.
Sue
When I started counting my blessings my whole world turned around.


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 1/2/2010 8:15 AM (GMT -7)   
He's taking six 8oz glasses of liquids daily, and fresh fruit as well.
His ascites has gone down nicely so far. Now he just looks like he has a small beer belly (for lack of a better term).
He was even comfortable enough to join me for a New Year's Day party at the home of my former rector with a bunch of people we both know from my church. We stayed there for about three hours and he enjoyed the time until he felt tired and needed to get his legs elevated again. This was his first real social event since his diagnosis, so I'm quite proud of him for doing that and I was proud to be able to have him there. His preference has been to let them know that he has not been well, but not to give any details -- other than when he went for the TIPS. Even at that, he wanted to be selective as to who knew. Most of the people there were just happy to see him as they had not seen him in a while. Lots of fine folks from that church pray for us daily.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/2/2010 12:17 PM (GMT -7)   

CGR, it's good to hear that things are progressing well with Frank.  I'm glad  that he felt up to getting out for awhile.  Though it tires us out, it's good mentally.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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