Oh, I really hope that the chemoembolization and TheraSphere will shrink/kill his tumor. He might undergo resection like I did, several months post TheraSphere. As I mentioned previously, it takes awhile for it to reach maximum effect. I wasn't a transplant candidate, either. I pray that Mike will be approved for these treatments and that they will be effective for him.
There was a questionable spot on my left lobe (all that remains of my liver), but the MRI with Gadolinium I just had shows no cancer. Thank God! So 2 1/2 years cancer free now. They are going to do scans every 3 mos. for awhile.
Believe me, Mayo is "on the case." They will do everything possible for Mike, and all of their doctors are very highly skilled.
Please keep us posted. As always, thoughts and prayers are with you both.
Oh, Sandi, I am so, so sorry. I'm sure their reasoning is that they don't want to make Mike's liver worse than it already is. ("First, do no harm.") The chemoembolization and TheraSphere totally killed not only the tumor I had, but also the entire rt. lobe of my liver, which will not regenerate. I have cirrhosis, but it's not bad. Viral load right now is 68,000. They look at whether treatment will lengthen life or shorten it. In Mike's case, apparently it would shorten his life. At least you found out quickly, rather than having to drag out the process.
Is the shunt clogged?
I am very happy to hear that he continues to go to meetings and remains sober. Sobriety will definitely lengthen his life and make his remaining time with you a lot more pleasant than if he were drinking. So I pray he continues on this path.
Big hugs to both of you,
I'm glad to hear that he's doing as well as he is. How is his mood after finding out neither treatment nor transplant is an option? Is he talking about it?
Why is he not wanting to go out (aside from the freezing weather?)
Is he on Lactulose?
Can't believe it's been a week since I posted.... guess for a woman who loves to talk.... I am finally speechless... as is Mike... well, until today... we're starting to come out of shell shock... and talk.... slowly... but I don't know where to begin here... I feel a total lack of resources for those who are not candidates for anything but to wait... this out to the end... and why ... why.. did those doctors just lay this on us without warning... and debriefing or referral for some time of support during this time... I could not find the usual words of encouragement... well, other than ... we"ll get through this together... and I can hear him thinking no... I'm the one alone here.... and so I tell him I'm right here by your side... but no I can not know what it is like to be you.. to be there... just waiting.... th Vitamen D helped cramping..... Mike is starting to lose weight... he had maintained for quite a few months... he's worried about this... so we're strategizing about high calorie/no protein... we did see nutritionist at Mayo... my suggestion... doing everything supposed to do... Mike is very picky eater... I finally had to tell him if he wanted to live... he'd have to eat.....then I was offered a job... that I don't feel I can turn down... but I won't be able to move closer to the job... due to Mike... so have to drive quite a ways... everyday... so getting support system set up.... but I won't be able to provide 24/7 for Mike if he worsens ... but we'll cross that bridge when we get to it... well enough for today... we're just processing all this... overall Mike is independent in everything... and eating... seems mentally clear at the time... so one day at a time I guess... Sandi
Mike is doing well... he is not retaining fluid... is clear minded... is eating... walking.. and all other normal body functions... has changed his diet... low sodium... eating small amounts... guess for now he's maintaining...
That's really good to hear! Thanks for posting! Keep us updated.