Hi, ladyj, and welcome to the forum! We do have some members here with AIH and I know a couple have been on CellCept. Hopefully, they will see your post and respond.
I had started my AIH journey with pred and CellCept as I was pretty ill and Imuran takes 2 months to kick in. I was switched to Imuran a couple of months later. My hep wanted me on Imuran as it has more long term data and he won't be taking me off all meds (I've been off pred since Dec '08). While I was on the CellCept, I didn't have any problems that I could tell. I was in the midst of all the steroid side effects but didn't have anything unexpected. How's it going for you?
AIH is not expected to 'go away' post transplant as it isn't a liver issue. It's an autoimmune disease that attacks the liver. Since you don't get to transplant your immune system, you always have a risk for a flare. The transplant meds are similar/the same as our current meds (plus a few more) so that keeps you immunosuppressed and less likely to have a flare post transplant. Why are you worried about a transplant? Has your doc put you on a list? It is possible to have regeneration even with a cirrhotic liver as long as there is enough healthy liver left. There are a few people on the Yahoo group who were told they needed transplant and still haven't as they are responding to the meds. Are you in remission now? Are you still on pred too?
Hi, Amyuk. I just wanted to welcome you to the forum. As you can see, we have a number of members with AIH. Thank you for sharing your experience.
Amy My husband has his transplant 8/3/09. He is still taking 500 mg Cellcept twice a day. The only problem he is having with the Cellcept is joint pain. Its really hard getting out of a chair sometimes but like Dave his attitude is better joint pain then in liver failure. He had his transplant at Vanderbilt and they have told him he may be able to stop taking the Cellcept. Until then we are doing exactly with the Dr. say.
You were placed on a transplant list with a MELD of only 8? I thought one had to have a MELD in the 20s.
Thanks for clearing that up, Ailsa. Here's hoping the meds won't do any further damage.
Chinawoman, welcome to the forum! I'm glad to hear that the Cellcept is working for you.
Best of luck to you!
Post Edited (GettingOnWithIt) : 4/18/2013 2:33:44 PM (GMT-6)